News: akce

We will celebrate World Hemophilia Day with a hike to Zvičina

Following last year's successful hike to Ještěd, we continue the tradition of outdoor gatherings. This year we head to the Krkonoše foothills to climb Zvičina on the occasion of World Hemophilia Day. The event takes place April 10–12, 2026 with accommodation in Velichovky Spa.

Seventh CSH and Hemojunior Gala Evening at Hotel Juliš

On Saturday 14 February, the seventh annual gala evening of the Czech Haemophilia Society and Hemojunior took place, this time at Hotel Juliš on Wenceslas Square in Prague. Approximately 80 guests attended the event.

Invitation to Social Evening 2026

After two years, we are changing the venue and inviting you to a new, exceptional space. The Social Evening will take place on February 14, 2026 – Valentine's Day – at the elegant Hotel Juliš on Wenceslas Square in Prague.

Gala Evening 2025

The end of the year is approaching, and with it the traditional preparation of the Gala Evening of the Czech Hemophilia Society and Hemojunior.

Intergenerational Meeting 2024 - Jihlava

We invite you to another Jihlava intergenerational meeting, this year already the tenth!

Gala Evening 13 January 2024

We are immensely pleased to invite you once again, after a brief hiatus, to the gala evening of the Czech Hemophilia Society and Hemojunior.

Invitation to the Intergenerational Meeting in Jihlava 2023

We invite you to the 9th part of the Jihlava intergenerational meeting, which will be accompanied by the CSH Conference.

Seaside 2023

More than a week ago, we returned from the long-planned international trip for people with hemophilia, their families, and friends, jointly organised by the Czech Hemophilia Society and Hemojunior.

Jihlava Intergenerational Meeting Accompanied by the CSH Conference

The autumn period has always been marked by preparations for the Intergenerational Meeting in previous years. It fosters mutual understanding, respect, breaks down barriers and prejudices, but above all brings joy regardless of age. Both organisations — the Czech Hemophilia Society and Hemojunior — have decided to invite all members to Jihlava again, from 26 to 28 November. Despite the not overly optimistically developing situation and in light of new anti-epidemic measures, we firmly believe that we will ultimately meet face to face. The EA Business Hotel will once again provide us with a venue, where the CSH Conference with the election of new leadership will also take place at the conclusion of the Intergenerational Meeting. It goes without saying how important this event is, and therefore we would like to invite all of you most cordially. For those of you who will not be able to attend the Intergenerational Meeting, we would like to note that the CSH Conference is planned for Sunday, 28 November, starting at 9:00 AM.

Red Once Again Illuminated April 17

On behalf of the Czech Hemophilia Society and Hemojunior and all people living with haemophilia or von Willebrand disease, we thank our partners and institutions who showed their support by lighting red lights on April 17, World Haemophilia Day. We appreciate your support! Photographer: Ondrej Hajek

World Hemophilia Day 2021 in the Virtual World

Dear friends, in just a few days we will again celebrate World Hemophilia Day. Every year on 17 April, we use this occasion to raise awareness of haemophilia and von Willebrand disease among the general public. This year, the situation once again does not allow us to celebrate the day with an in-person gathering. As last year, we would like to invite you to join the celebrations at least in the online space. Send us your photo by Saturday showing how you celebrate this day with the characteristic red colour. We will again publish your photos throughout Saturday on our Facebook page. We place no limits on your imagination and creativity!

The Whole Family Exercises

Join us. We start on April 1, 2021!

Adult Rehabilitation Retreat — This Time in the Vysočina Region

As we hinted in the article recapping the last retreat, we are once again changing the location. This time not for capacity reasons, but due to insufficient service and failure to meet conditions on the part of the operator. We did not have many options and opted for Hotel Bystré in the Vysočina region, not far from Polička. Hopefully, this time we have chosen correctly. The communication so far and a visit to the hotel suggest we have. We will once again have the entire hotel at our disposal, with 20 rooms and a total capacity of approximately 50 people. We will have free access to a saltwater pool, and a whirlpool, sauna, fitness room, and common room will also be available. Full board will be provided as before. And rehabilitation will of course not be missing either.

Summer Haemophilia Camp returns to Zubří

If the situation permits, we would like to hold the traditional children's haemophilia camp again this year. Below you will find information about prices and registration. ATTENTION, DATE CHANGE! The camp will take place from 21 to 31 August 2021 at the well-known Zubří Recreation Centre near Nové Město na Moravě. You can look forward to the proven team of counsellors and medical staff from previous years; Michael Bereň takes over the camp leadership baton and will be the head counsellor from next year onwards.

Autumn Rehabilitation Retreat for Adults Took Place in the Třeboň Region

Due to spring government restrictions, we were forced to postpone the rehabilitation retreat for adult hemophilia patients to the turn of summer and autumn. Just before departure, we were once again worried whether everything would take place and under what conditions. In the end, however, almost everything worked out. The change of date and health complications of some registrants meant we did not fill the facility's capacity and did not beat last year's record in the number of participants. Even so, 40 people is a very respectable number. Nearly half were hemophilia or Von Willebrand patients. And if we include carriers in the count of hemophilia patients, we exceeded the halfway mark.

Prague Will Light the Petřín Lookout Tower in Red

Every year on 17 April we observe World Hemophilia Day to raise awareness about hemophilia, von Willebrand disease, and other blood clotting disorders. This is its main purpose, because with increased awareness comes better diagnosis and access to treatment for thousands of people. The motto of this year's World Hemophilia Day is "Get + involved." Whether you are hemophilia patients yourselves, affected by von Willebrand disease, family members, a corporate partner, volunteer, or anyone who sympathizes with our Society, we want to encourage you to help raise awareness about the disease.

Summer camp moves to the Lužnice river valley

In the summer of 2020, the Summer Haemophilia Camp will take place towards the end of the holidays, from 15 to 29 August. The event is once again moving to a new location -- this time we have chosen the Lužnice Recreation Centre (https://www.rsluznice.cz/), situated near Tábor in South Bohemia. The facility will offer us comfortable cabins for accommodation, plenty of outdoor space on the riverbank, sufficient amenities, yet surrounded by nature. Vojtěch Horník remains the head counsellor, and the medical and physiotherapy aspects will be ensured by proven staff.

Adult Rehabilitation Retreat in the Třeboň Area

Next year we are once again changing the location of the adult rehabilitation retreat. We really liked Penzion Rokytenka, but once more the capacity was insufficient and we had to turn some applicants away. This time we will head to the Třeboň area and from 19 to 26 September 2020 we will visit Hotel Nežárka (https://www.hotel-nezarka.cz/). The hotel has its own swimming pool, which will again be reserved exclusively for us, and offers 20 rooms. That is 3 more than this year. We believe we will be able to accommodate all those interested in the retreat.

Jihlava Intergenerational Meeting — Not Just About News in Hemophilia Treatment

In November, the seventh meeting of the Czech Hemophilia Society and Hemojunior took place at the EA Business Hotel in Jihlava. The pleasant premises provided a suitable venue for gaining new enriching knowledge and social gatherings for exchanging experiences. The professional programme met our expectations as always — both the Friday lecture on lower limb axis correction by orthopaedist Petr Teyssler, accompanied by numerous photographs, and the personal experiences of young hemophilia patient Lovre Šuta with the myPKFIT mobile application received positive feedback. The varied programme continued with Saturday's thought-provoking lecture by psychologist Petra Bučková and physiotherapist Marie Katzerová on pain in coagulation disorders, the witty and encouraging talk by another psychologist David Bystrický, and last but not least, new information on hemophilia treatment options from haematologist Jan Blatný.

Hemophilia in Jihlava Again This Year

We would like to inform members of the Czech Hemophilia Society and Hemojunior that the next intergenerational meeting of people with hemophilia and their loved ones will take place in November, again in Jihlava. For several years, both associations have been organising generational meetings aimed at helping not only members, but everyone dealing with hemophilia and von Willebrand disease, to navigate all related issues. And also their partners, parents, friends -- in short, anyone who is interested. Everything is being prepared for 15-17 November at the EA Business Hotel. The main programme is traditionally scheduled for Saturday, but already on Friday evening we will be able to learn a number of new developments in the fields of orthopaedics and haematology. Conference rooms, salons for group and individual meetings, demonstrations of individual rehabilitation, proper factor administration and vein care, and many other interesting activities will be available. Professional childcare will be provided for small children if needed.

Adult Rehabilitation Retreat in Rokytnice, Orlické Hory

During the week from 18 to 25 May, another rehabilitation retreat for adult haemophilia patients took place. At this new venue too, we ran into capacity limitations and registration for the retreat had to be closed as early as February. For those who attended, however, Penzion Rokytenka offered a pleasant setting and a beautiful environment not only within the property grounds but also in the surrounding area. At this point, we are deciding whether to return here next year or take advantage of another option with a higher capacity. And how did we spend our week in Rokytnice? The contribution from Radim, who participated in the retreat for the first time, says it all. We thank him for his lines below and look forward to further gatherings together. On behalf of the organisers, Michal Skořepa.

Once Up, Once Down (Below)

On the last Saturday of April, it was time to descend into the depths of the Anselm mine at Landek Park in Ostrava-Petřkovice. Landek is a hill in Ostrava, and not just any hill. It is a world-renowned locality in terms of geology, archaeology, history, natural science, and mining. From early morning it was clear that something was being prepared in the local compressor hall. From almost every corner of the country, participants dressed in red gradually began to arrive to share a day full of discovery and fun. All of this in connection with World Haemophilia Day, which we commemorate every year on 17 April. The majority were naturally local members of the Czech Hemophilia Society and Hemojunior — those from Ostrava, including the physician and nurse from the Ostrava haemophilia centre.

We Observe World Hemophilia Day

World Hemophilia Day falls on 17 April and its main goal is to raise public awareness about hemophilia and other related blood clotting disorders and to gain attention and understanding for them. Thanks to the efforts of patient organizations from around the world, access to care is gradually improving even for those who still remain without treatment. Its history dates back to 1989 and the World Federation of Hemophilia (WFH) chose 17 April in honour of the birthday of its founder Frank Schnabel. The WFH was founded in 1963 and is headquartered in Montreal, Canada, currently registering 140 member countries across all continents.

Hemophilia patients head to Landek...

...or World Hemophilia Day celebrations in Ostrava on 27 April 2019. We have decided to invite members of both organizations to Landek Park in Ostrava, where we will once again commemorate the day dedicated to hemophilia patients around the world. On 17 April 2019, it will be thirty years since the World Federation of Hemophilia, in honor of the birth of Frank Schnabel, its founder, designated this date as World Hemophilia Day. During this period, the whole world dresses in red, prominent buildings in world capitals are illuminated, and various happenings, press conferences, and social gatherings of those connected with hemophilia take place. The Czech Republic is not lagging behind in this regard.

Summer Camp Information Update

Due to the sudden closure of the Zubri Recreation Centre, which we reported on in early February, we were forced to seek an alternative way to hold the 2019 Summer Haemophilia Camp. The good news is that we have found a solution and the camp will take place, but we had to make several compromises. The key change is the new camp dates — it will now run from July 28 to August 8, 2019. This is a shortened period from Sunday to Thursday; instead of the traditional two weeks, the camp will last 11 days. The location remains in the Vysocina region — Pension Safrankuv Mlyn (www.safrankuvmlyn.cz) will host us. Accommodation will this time be in a building, but the grounds will provide ample opportunities for outdoor activities (the facility is situated in a secluded spot surrounded by nature), as well as space for medical facilities and physiotherapy, including a private swimming pool.

Complications with the 2019 Summer Haemophilia Camp

We have recently received information from the Zubří Recreation Centre that they are forced to cancel all summer stays at the facility for operational reasons, meaning that our summer haemophilia camp cannot take place there either. We are currently working intensively to secure an alternative venue. We will do everything possible to change only the location and not the dates; however, given the relatively short time remaining until the summer holidays, we are not able to guarantee anything at this moment. Registration for the camp is still open — you can find the registration form at this link.

Adult Rehabilitation Retreat 2019 in a New Setting

After three years at Penzion Ohrada, we have decided on a change. This time we will head to the Orlické Hory mountains, specifically to Hotel Rokytenka in Rokytnice v Orlických Horách. Once again, it is a property in a beautiful setting that will be reserved exclusively for us. A swimming pool, whirlpool, sauna, games room, common room, restaurant lounge, outdoor area including seating and a children's playground will all be available. More information about the property can be found at www.rokytenka.cz. The hotel is just a short walk to the town square of this small town of two thousand inhabitants. There are many interesting places nearby for excursions.

All Generations of Haemophilia Patients Gathered in Jihlava

The intergenerational meeting of haemophilia patients and their closest ones holds a special place in our calendar. Nobody doubted that interest would be great again this year. The topics clearly invited it. Nearly one hundred and fifty participants filled the pleasant premises of the EA Business Hotel in Jihlava to learn about the latest developments in not only the haemophilia world. This time, the Society also made room for people with von Willebrand disease. Unfortunately, interest from members with this condition was almost nil. And so the entire programme focused on haemophilia-related topics.

Zubří in ancient Greek garb

On the last June evening of 2018, a total of 34 Greek citizens were invited to a great feast in Kalipolis, held in the presence of the ancient Olympic gods, and which marked the beginning of a two-week contest for the favour of Zeus, Hades, Poseidon, and the other Olympian gods. Yes, we are of course talking about the annual summer haemophilia camp, once again held in Zubří in the Vysočina region, which this year was thematically set in the spirit of ancient Greece.

Together This Time in Jihlava

Three editions of the traditional "Together about Haemophilia" meeting took place at one location, and then we began moving to a different venue each year. This time, we will meet on 14-16 September 2018 in Jihlava. We will be hosted by the local EA Business Hotel. Once again, we decided to dedicate an entire weekend to this event and give you the opportunity to spend more time together. The programme will be even more focused on so-called workshops, i.e. discussions on individual topics in smaller groups, allowing for mutual sharing of knowledge and experience.

The Last Time in Vísky?

During the week of 11–19 May, another edition of the rehabilitation retreat for adult hemophilia patients took place. Most likely for the last time in a while at the Ohrada guesthouse in Vísky near Letovice. While the guesthouse meets practically all our requirements for holding this retreat, the general consensus is that it is time for a change. We are currently searching intensively for a suitable location and for now it looks like next year we will head to the Orlické hory mountains. Jarek Trefil shared his impressions from the retreat. We thank Jarek and look forward to further gatherings with everyone. On behalf of the organisers, Michal Skořepa.

The Regional Workshop Project Reports Another First

It started first on Saturday 14 April with a rehabilitation-themed seminar in Plzeň, and three days later, on World Hemophilia Day, we continued in Hradec Králové. At the close of April, which has traditionally belonged to hemophilia patients, we would like to look back on these two workshops. And with whom else but the participants themselves? Two of them shared their impressions with us, and we present their observations in the following lines.

We Love Science

Saturday 14 April was a much-anticipated day for members of the Society and Hemojunior. Even though the beautiful spring weather encouraged outdoor activities, the attractions of Techmania in Plzen proved irresistible for about 150 of our members. They once again came to celebrate the day that belongs to haemophilia patients worldwide -- 17 April. All this was traditionally made possible with the very generous support and cooperation of Novo Nordisk. Truly extraordinary experiences awaited at Techmania itself.

Sharing Knowledge and Experience Makes Us Stronger

World Hemophilia Day has been commemorated every year since 1989 on 17 April -- the birthday of Frank Schnabel, founder of the World Federation of Hemophilia (WFH). Frank Schnabel (himself a person with haemophilia) founded it in 1963 at a meeting of representatives of six national haemophilia societies in Copenhagen. World Hemophilia Day provides haemophilia families and their loved ones with an opportunity to introduce the public to this disease, its challenges, and to share experiences with friends, colleagues, healthcare workers, neighbours, and others, and to find understanding and support. During World Hemophilia Day, people showing solidarity with haemophilia patients wear the colour red, and WFH member organisations join the global "Light It Up Red" project. Red is the symbol of this blood disorder.

Jubilee Celebration

Science shows, brain teasers, experiment demonstrations, classic and interactive exhibitions, unexpected experiments, unconventional workshops, and on top of that a super-modern planetarium at the Techmania Science Centre in Plzeň. This is how the website of the city of Plzeň describes the venue we have chosen for this year's World Haemophilia Day celebration, which falls on 17 April every year. We will celebrate it together for the tenth time, this year slightly in advance, on Saturday, 14 April 2018. Since the exhibitions are fully covered, we do not need to worry about bad weather.

First Regional Meeting of Haemophilia Patients in the Hradec Králové Region

In a short period of time, we would like to invite you once again to the capital of the Hradec Králové Region. Although haemophilia was discussed in Hradec Králové recently, this time we are meeting for a different reason — the next instalment of our regional workshops. We would like to invite not only adult haemophilia patients with companions, but also paediatric haemophilia patients accompanied by their parents (or parents alone). Participants will have the opportunity to meet specialists from the local haemophilia centre who help haemophilia patients address their health issues.

Summer Haemophilia Camp 2018

With the new year comes the already promised further information about the traditional summer camp, along with registration details. Once again, we start right after the end of the school year -- the camp will take place from 30 June to 14 July 2018 at the well-known Zubří Recreation Centre near Nové Město na Moravě. You can look forward to the proven team of counsellors and medical staff from previous years, with Vojtěch Horník as the head counsellor.

Regional Workshop Heads to Brno for the Second Time

In cooperation with the haemophilia centre at Brno University Hospital and the company Shire, we are preparing the 2nd regional meeting of colleagues in the South Moravian Region. The first meeting took place in Brno as early as 2011, and now we would like to follow up. Our aim is to help all haemophilia patients, their family members, and partners in managing the disease.

You Can Never Have Enough Information

Over the past five years, autumn has become a time when hemophilia patients of all age groups share moments together at the traditional intergenerational meeting. This year was no exception. The second October weekend brought all participants together in the largest conference space at the Top Hotel in Prague. For young and old alike, it was an adventure navigating the local labyrinth of corridors. No one got lost, however, and nearly one hundred and fifty participants could enjoy shared moments with friends and renowned experts.

Together About Haemophilia -- Again

We cordially invite members of the Society and Hemojunior to the next edition of the intergenerational gathering of haemophilia patients and their loved ones on Friday and Saturday, 13 and 14 October. The fifth annual edition of the traditional "Together About Haemophilia" meeting will take place this time at the Top Hotel in Prague (https://www.tophotel.cz), once again in cooperation with Shire. After a year, therefore, a move from nearby Čestlice -- unfortunately unwanted, but for certain reasons unavoidable. The complete professional programme is concentrated on Saturday, with an expected start at 9:00 and finish at 16:00. However, you can arrive a day earlier; accommodation will be available at the hotel. Non-members may also attend in any number; only the participation fee differs.

Notes from a participant

Notes from a participant of another meeting of Northern Moravian haemophilia patients in Ostrava. The centre there is particularly active, cooperates effectively with the association, and so we are happy to give the floor to one of the satisfied guests. The second Haemophilia Day in Ostrava took place once again in the beautiful setting of the Imperial Hotel, where considerably more of us gathered than last time. After a coffee and a small refreshment, we sat down for the professional lectures.

Adult Rehabilitation Retreat in Vísky

This year's edition was marked by newcomers. There were eight of them, and another three participants returned to the retreat after many years. The retreat was record-breaking not only in this regard, but also in terms of the total number of participants. After a year, we once again gathered at Penzion Ohrada in Vísky near Letovice, where we had full facilities at our disposal. Accommodation with meals, a common room, rehabilitation rooms, a whirlpool, a swimming pool, and last but not least a conference hall with projection where we watched the Ice Hockey World Championship. The result of our hockey players was perhaps the only negative of the entire retreat. Its programme hardly needs a lengthy description any more. Rehabilitation and hydrotherapy were complemented by horse riding, excursions, a table tennis tournament, barbecues, and campfire cooking. More in the photo documentation.

Following the Tracks of the Oslavany Permons...

Just a few kilometres southwest of Brno lies an area that this year became a refuge for all those who decided to come and celebrate World Hemophilia Day. A day full of relaxation, discovery, fun, victories, and adventure awaited them. We're talking about the Permonium amusement park. It was created based on Oslavany legends on the grounds of the former Kukla coal mine, where six mysterious permons (mine spirits) have lived since ancient times - Starohorský, Bouchal, Zaklášterský, Vinohradský, Kovářova kopce, and Kopce Koblihu. The park is suitable not only for families with children, but visitors of all ages can find something enjoyable here. And so, once again after a year, traditionally thanks to Novo Nordisk, we had the opportunity to meet "our own" and experience an extraordinary day full of adventures and new discoveries.

Become Miners...

...and come celebrate in Oslavany. We warmly invite all members of the Czech Hemophilia Society and Hemojunior to traditionally commemorate and celebrate World Hemophilia Day. The "Permonium" amusement park in the closed Kukla mining complex carries on the local coal mining tradition. Everything will take place on Saturday, 22 April, in a venue full of extraordinary scenery, sets, and props, where the spaces conceal secrets millions of years old. Exciting attractions, modern technological equipment, and top-quality facilities are all prepared.

Off to Zubri for Camp Again in 2017

The traditional children's hemophilia camp will also take place next year. Below you will find the first details about prices and registration. The dates remain the same -- the first two weeks of summer holidays -- so the camp will run from 1 to 15 July 2017 at the well-known Zubri Recreation Centre near Nove Mesto na Morave. You can look forward to the proven team of leaders and medical staff from previous years, and Vojtech Hornik will once again be the head counselor.

Together again, albeit elsewhere

Many members and supporters of the association have grown accustomed to meeting each autumn at the "Together about Haemophilia" event. In recent years, everything took place at the Jezerka Hotel in Eastern Bohemia, but variety is the spice of life. In cooperation with long-standing partner Shire (formerly Baxalta, before that Baxter), CSH prepared a programme at a hotel by the Aquacentre in Čestlice – just outside Prague, right by the D1 motorway. The programme itself can hardly be reinvented; it is more about what fills the familiar framework. There is always an effort at renewal, but the foundation remains – delivering the latest information needed by everyone, keeping them up to date with developments and the outlook for care, and last but not least, answering as many questions as possible from participants.

Together again

Where and about what? About haemophilia again, as in the three previous autumns, but this time not at Hotel Jezerka near Chrudim, but at Aquapark Čestlice near Prague, practically right on the D1 motorway. Mark the date 21 to 23 October 2016! The foundation is once again the Saturday professional programme, with experts from several fields bringing the latest news. Physicians -- haematologists Peter Salaj from UHKT Prague and Jan Blatný from the Children's Hospital Brno, orthopaedist Petr Teyssler, dentist Eva Zapletalová, physiotherapist Marie Katzerová, and social affairs specialist Marcela Štáfová. Regular attendees already know them all. Specialists in psychology and cardiology are also being negotiated, and on Friday evening there will be an opportunity to meet hepatologist Petr Urbánek, with whom we have been cooperating for several years. An especially interesting topic at a time when new developments in the treatment of hepatitis C are being loudly discussed.

This year's summer camp is behind us

The beginning of this year's summer holidays in haemophilia circles belonged to a truly traditional event -- the Summer Haemophilia Camp. For the third time, we visited the beautiful setting of the Zubří Recreation Centre near Nové Město na Moravě. This year saw many new faces among the camp participants, but the team of counsellors was also partially refreshed compared to previous years. However, all newcomers handled their roles excellently, and the camp proceeded in a relaxed atmosphere.

A Successful Change

The regular May rehabilitation retreat is already behind us for this year. As we announced in advance, this time it was in a different setting than in previous years. Not only did we move from Lednice after five years, but for the first time in the history of these stays we also moved away from a spa town. The Ohrada guesthouse in Vísky u Letovic was to replace it. It offers everything we need for our purposes, including meeting rooms, rehabilitation facilities, a swimming pool, and whirlpools. Including accommodation all under one roof. Comfort thus increased not only for the organizers, who did not have to prepare breakfast every morning, but also for participants, as they no longer had to walk anywhere. We especially appreciated this on days when the weather was not on our side.

Advanced School of Haemophilia

The regional seminars for patients registered at individual centres have reached Prague. Invitations were sent to those who attend the Institute of Haematology and Blood Transfusion (ÚHKT) and the children's centre at Motol. Once again with the support of Baxalta (formerly Baxter), they gathered at the Andel's Hotel in Smíchov, near the Anděl metro station. The programme remained traditional, but the content turned out to be somewhat unconventional. Although the format was also slightly different - this time participants did not have to give up a weekend, but rather a Wednesday afternoon. This proved to be a good choice, as not everyone - whether invited experts or attendees - is willing to sacrifice an entire day off.

Nobody Got Lost. Hopefully.

Loučeň Chateau near Nymburk was truly buzzing on Saturday. Nearly 160 participants came to enjoy not only the atmosphere of the chateau grounds, knights' tales, the Kašpárek and witch puppet show, or broomstick flying lessons performed by witches Gertrůda and Ethel, but mainly to meet friends once again after a year and commemorate World Hemophilia Day. Thank goodness the meteorologists were wrong this time — despite a slight cooling, we spent most of the day in the adjacent chateau park.

Regional Seminar in Prague

The Czech Hemophilia Society, in cooperation with the haemophilia centres at ÚHKT and Motol University Hospital and the company Baxalta, cordially invites you to a regional seminar. Everything is set for 4 May 2016, 3:00 PM – 7:00 PM, at the Andel's Hotel, Stroupežnického 21, Prague 5. A conference room, several small salons for individual meetings, a demonstration of individual rehabilitation, and many other interesting items will be available. Information will be presented by leading experts, including haematologists MUDr. Peter Salaj from ÚHKT Prague, MUDr. Vladimír Komrska, CSc. from paediatric haematology at Motol, specialised orthopaedist MUDr. Petr Teyssler, PhD., physiotherapist specialising in haemophilia rehabilitation Martin Mužíček, DiS, social affairs specialist Mgr. Marcela Štáfová for specific cases, and others.

For the Eighth Time, and Different Again

We are talking about the celebrations of World Haemophilia Day, which falls on 17 April every year and is commemorated by the haemophilia community worldwide. From the early medieval experience at the Zeměráj adventure park, our steps will lead us further north, and the next stop will be the Baroque Loučeň Castle in the Nymburk district. One of the few available dates was Saturday, 23 April, and so on that day the castle will belong not only to the members of the Czech Hemophilia Society and Hemojunior, but also to their loved ones.

Registration Is Still Open for the Reconditioning Stay for Adult Haemophilia Patients...

As you have surely noticed in the events plan, this year brings a change of location for the reconditioning stay for adult haemophilia patients. After five years in Lednice, we decided to look for a new location, even though we were very satisfied with the current one. The change involves not only the choice of town but also the fact that for the first time we will not be in a spa town.

Summer Haemophilia Camp 2016

The camp is still more than half a year away, but we are already bringing you the first more specific information and registration instructions. We have already announced the camp dates -- this time it will take place from 2 to 16 July 2016 at the Zubří Recreation Centre in the Vysočina Highlands. You can mark these two weeks in your diaries and look forward to them.

Meeting of Generations for the Third Time

The autumn-coloured surroundings of Hotel Jezerka welcomed participants to another intergenerational meeting entitled "We Are Here for You." Once again, we were met with a warm reception and top-level services. The dry summer caused the water level of the Seč Reservoir to drop dramatically, but the same cannot be said about the number of participants. Although the attendance did not exceed last year's record, interest was again strong. Around eighty participants of all age groups could look forward to a range of new information from experts in several specialisations, practical demonstrations and exercises related to the previous lectures, wellness, and above all, different generations of those who share something in common with haemophilia met here.

Good News -- The Summer Children's Camp Continues

The information published in the minutes of the Czech Hemophilia Society Council meeting on 25 August 2015, stating that this year's summer camp was the last one for Martin Bohun as head counselor, raised concerns. Will the camp continue? Will this long-standing showcase of the Society come to an end? The answer to the first question is yes, and to the second, no. We are very pleased that the camp will take place again next year, led by Vojtech Hornik. No fundamental changes to its format are expected.

Journey with the Little Prince

Almost everyone knows the book The Little Prince by Antoine de Saint-Exupery, whether child or adult. The book is full of beautiful quotes about life, love, and friendship, and many of us know some of the sayings by heart. In recent days, the 2015 haemophilia camp ended and with it our shared journey with the Little Prince. This year's camp-wide game was inspired by Exupery's most famous literary character and the adventures he experienced.

When Autumn Asks

...what the Society was doing in spring and summer, we can answer that, for example, it was preparing the third edition of the gathering "We Are Here for You." Yes, it is now confirmed — Hotel Jezerka in Sec u Chrudimi awaits Society guests on October 23 and 24. The welcoming and elegant setting of the recreational hotel has already earned recognition over the past two editions. Thanks to the Baxter company, several dozen members of CSH and Hemojunior and their supporters gather here. They can look forward to a range of new information from specialists in several fields, practical demonstrations and exercises on the topics of the preceding lectures, a wellness environment, and above all, the opportunity for different generations of those connected to haemophilia to meet again.

Renewed Interest

After a period of decline, a turnaround has come -- interest in the adult rehabilitation retreat has grown. Sixteen people interested in rehabilitation gathered in Lednice in mid-May, filling the guesthouse to full capacity. The programme remained the same as in previous years, but it did bring certain innovations. Particularly in the quantity and the associated quality of the rehabilitation itself. There is a difference whether two or four physiotherapists attend to the participants. That is exactly what happened, as two additional therapists joined the two traditional rehabilitation specialists. They normally work at the Vráž spa, which has maintained close contact with the organisation for several years now, so we consider them highly qualified experts.

Through Paradise, Preferably Barefoot

The highlight of the World Hemophilia Day celebrations was undoubtedly the gathering of Czech Hemophilia Society and Hemojunior members at the Zeměráj adventure park. The medieval village near the Orlice Dam came alive on the last Saturday of April with more than one hundred and fifty participants, who enjoyed a number of extraordinary experiences across the nine-hectare grounds. Not only children could try making fabric from wool and linen, spin a potter's wheel, or learn how people slept in 12th-century huts. At the archaeological site, we sifted through sand to find pottery shards, bones, coins, jewellery, and necklace beads, and could keep some as souvenirs.

A Slightly Rippled Surface on the South Bohemian Pond

In terms of the life of the haemophilia community, one of the quietest regions in the Czech Republic is precisely the South Bohemian one. There are no activities here, and very few Society members come from this area. This is one of the reasons why the Society directed another instalment of its regional workshops here, with the aim of helping local colleagues. It assembled the usual team of experts and reserved a meeting at the Hotel Podhrad in Hluboka nad Vltavou for as broad an audience as possible. Two direct participants wish to share their impressions.

Invitation for All South Bohemians

For several years now, regional seminars have been organized by the Society with the aim of helping everyone dealing with hemophilia - not just members, but all who are affected by hemophilia - to navigate everything related to it. And also their partners, parents, friends - in short, anyone who is interested. In April, the meeting will take place in Hluboká nad Vltavou.

Off to Zeměráj

Who would not want to spend lovely moments in a paradise where the diversity and beauty of Czech nature and history come together, where you can experience things not only through sight and hearing but also through your bare feet, hands, nose and taste! That is what this year's World Haemophilia Day promises. Come and try various games, puzzles, adventure tasks, or simply sit back and meet new and old friends in a realistically recreated setting of an early medieval village.

Lednice Again Next Year

As you already know, the next edition of the adult reconditioning program will also take place in Lednice. The dates are now confirmed as 15 to 23 May. There have been no changes in other organizational matters either. For those interested, we have prepared accommodation, breakfasts and lunches, individual rehabilitation (for hemophilia patients only), therapeutic baths, and a pool.

Summer Camp -- Back to Zubri Again

Dear campers, we are pleased to announce that the summer camp will take place as planned in 2015 as well. The Recreational Facility in Zubri in the Vysocina Highlands proved successful, so we have reserved it for the next two years. Next year we will return to the traditional two-week format, from 8 to 22 August. Those who plan to participate should keep this date in mind.

How We Met in Ostrava

The last major gathering of this year took place in northern Moravia, and the regional workshop attracted a truly large number of participants. Among them were two young members of the association who described everything they witnessed as follows. The original plan to use the facilities and services of the Klimkovice spa fell through, so we headed to the pleasant setting of the Imperial Hotel. Everything was organized in cooperation with the Hematology Department of Ostrava University Hospital and Baxter. Despite initial concerns about low registration numbers, what was probably the highest number of participants in the entire history of workshops attended.

Hemophilia Workshop with Ostrava University Hospital

In cooperation with the Hemophilia Center at Ostrava University Hospital and Baxter, we are organizing a regional meeting for colleagues in the Moravian-Silesian Region. We aim to help all hemophilia patients, their family members, and partners in managing their condition. Similar events have already been successfully held in the South Moravian, Liberec, and South Bohemian regions.

We Were Cheerful and Serious...

...but above all, for you. That was the name of the second edition of the gathering for all interested parties at the very nice Hotel Jezerka near Sec in eastern Bohemia. Last year the bar was set quite high, and this year — according to participant feedback — it was maintained. Defending is always far more difficult than starting. Once again, we can call the event a "meeting of generations." The age range covered virtually all categories and brought something for everyone. Again with an emphasis on the usefulness of the information provided, complemented by pleasant surroundings, an inviting wellness area, and hospitable treatment.

Zubří full of pirates and sailors

After years spent in the Beskydy Mountains, our camp moved a few kilometres further, to the Zubří recreational complex near Nové Město na Moravě. Here we spent just one week to try out the new environment and test our capabilities. The rich programme began on Saturday, 16 August, with an all-camp game launched by dividing the children and leaders into teams under the command of Baron Butterbrot Von Marmelade. In a themed setting, the Baron described his lifelong battle with the pirate Wilkinson and urged everyone present to help him find the way to the treasure, along with the promise of adventure on the shared journey.

We are here for you again

Following last year's successful gathering called "We Are Here for You", we are preparing another edition this year too. Again in the beautiful surroundings of Hotel Jezerka in the Železné hory Protected Landscape Area by the Seč Reservoir, again with a rich programme. The only difference is that we will extend it by one day. We will meet as early as Friday morning, 19 September, and leave Jezerka on Sunday, 21 September.

Another Lednice Retreat Behind Us

Another traditional rehabilitation retreat for adults with physiotherapy, procedures, group discussions and evenings, barbecues — simply the right kind of relaxation that brings us together. Being in the Lednice-Valtice area, we also visited a wine cellar. With some sadness, we must note the repeated decline in the number of participants and the lack of interest from physiotherapists. We had been flagging the need for cooperation with new physiotherapists for a long time, but we were unable to attract anyone new. All the more thanks go to Alena and Naďa for joining us once again.

A Train Robbery with a Happy Ending

The end of April has traditionally been dedicated to World Hemophilia Day celebrations. This year, the celebrations took place on a larger scale than usual, as they were launched with a charity event in Prague held on 17 April itself. We have already reported on how it went, and you can recall it here. The second part of the celebrations then took place on Saturday 26 April, naturally with members of both the Czech Hemophilia Society and Hemojunior in attendance. Since some members of one or the other organization were apparently prevented from attending due to serious reasons (how else to explain someone voluntarily missing out on this exceptionally successful celebration), we bring you a brief report on how it went.

April Full of Celebrations

World Hemophilia Day celebrations are approaching -- here is more detailed information. On the actual day, Thursday 17 April, a procession raising awareness about hemophilia will pass through part of Prague. It will start from Palackeho namesti at 4:00 PM, where you will find a clearly red and highly visible stand. The procession, led by ambassador Jana Dolezelova, should last approximately 50 minutes, culminating at the fountain on Namesti Kinskych in Smichov.

Full Steam Ahead

After successful events with go-karts, in a western town, a medieval fortress, or a cruise on the Bata Canal, this time we will take to the railway tracks and celebrate World Hemophilia Day together. The format will be similar to last year's "nautical" theme, only the navy blue will be replaced with railway colours. The programme, good food, and drinks will remain, but in a different setting.

Summer camp in the Vysočina Highlands

The final decision has been made about the venue for the children's summer camp. From the Beskydy mountains and forests, we are heading to the very heart of the Vysočina Highlands. The Ondrášův dvůr Recreation Centre will be replaced by Zubří near Nové Město na Moravě, which we hope will be equally successful for us.

The "I Support Haemophilia Treatment" Campaign Has Launched.

At the end of January, a press conference was held on Střelecký ostrov in Prague with extensive media attendance, which kicked off the entire campaign. Baxter became the partner of the event, and the project ambassador — pharmacist and Miss Czech Republic 2004, PharmDr. Jana Doleželová — was also present.

Another Gathering in Lednice

The rehabilitation stay for adults in Lednice will take place at practically the same time as in previous years, specifically from 16 to 24 May. You can register now; we will announce the registration deadline once capacity is reached.

A Sunny Haemophilia Weekend

The second November weekend belonged to everyone who wanted to learn about new developments in haemophilia treatment -- above all, to obtain information about current changes in social affairs, to discover the importance of psychological counselling in managing this disease, or to meet friends and exchange experiences with each other.

We Are Here for You

In other words, a discussion about everything that interests you in connection with haemophilia. We offer you another opportunity to make contact not only with fellow patients with the same condition, but also with specialists. The lack of information and contact with people in a similar situation is keenly felt. Family members, partners, and friends of haemophilia patients who want to be a source of support for their loved ones feel this strongly as well. That is why we consider every personal meeting a significant benefit for members and for the society itself.

Indian Summer at Ondrasov Dvur

For the ninth time, and most likely the last, our camp visited the Beskid mountain recreation center Ondrasov Dvur. Nearly 60 members of the Gothaj Indian tribe gathered here to unite in a common fight against the palefaces. We divided into four groups - Children of the Sun, Coyotes, Wakpa, and Peta Oyate - between which rivalry reigned during the stage games, but the everyday camp routine was the same for everyone.

Memories of Lednice

With some delay, for which we apologise, we bring information about this year's rehabilitation stay for adult haemophilia patients. The stay took place from 17 to 25 May with 19 participants. Compared to previous years, this represented a significant decrease in the number of attendees. Health and personal issues unfortunately prevented several regulars from attending. However, new faces appeared again and blended very well into the established group.

The Society Safely Back in Harbour

It navigated the challenges of the Bata Canal connected to the Morava River and, after several kilometres, returned to the harbour in Veseli nad Moravou. Not the entire Society, but those members and guests who came to celebrate this year's World Hemophilia Day. The actual date is in April, but since it can be windy on the water, the Society Council decided to postpone D-Day to May. It paid off -- the weather was very generous and after a long, persistent winter, it showed a friendly face to both sailors and passengers.

World Hemophilia Day? This Time, Sailor Style.

It is celebrated all over the world every 17 April. This time, however, we are postponing it slightly and waiting for better weather. We will be sailing on the Bata Canal.

Come to Lednice

This year's rehabilitation retreat for adult hemophilia patients will again take place in Lednice, at practically the same time as last year, from 17 to 25 May. Due to the high interest in the stay in previous years, we ask you to register as soon as possible. We apologize in advance if we are unable to accommodate all applicants, as the facility capacity is 30 persons.

Summer at Ondrášův dvůr

Come with us to our traditional camp at Ondrášův dvůr. The team of counsellors and medical staff is already looking forward to seeing you. Do not delay in sending your application -- places are once again limited. People with haemophilia and those with von Willebrand disease will of course be given priority.

Ondrášův Dvůr Lived the Olympics

On a weekend in mid-July, counsellors, doctors, a nurse, physiotherapists, and most importantly 42 children gathered for the eighth time at the Beskid Mountains facility Ondrášův Dvůr to spend the traditional two weeks together at the summer hemophilia camp. This year's Olympic Games in London were a major event, and so our camp-wide game also had an Olympic theme. This was reflected in nearly every activity at the camp -- the counsellors represented the Olympic Committee, the children went to train at the training centre, health issues were handled by the sports physician, and carbohydrates, fats, and proteins were replenished by the athletes at the nutrition centre.

Week-Long Reconditioning Stay in Lednice

Last week saw another edition of the reconditioning stay for adults. You can learn more about it from the contribution below. The organisers can confirm that the event was once again a success, and we thank the participants and especially the physiotherapists who took care of them. We have already reserved a date for 2013 -- 17 to 25 May. Those interested can therefore plan their holiday well in advance. On behalf of the organisers, Michal Skorepa looks forward to the next edition.

Photo Gallery: Parents of Young Hemophilia Patients Meet in Brno

Photo gallery from the meeting of parents of young hemophilia patients with medical staff, held on 21 April 2012 at Hotel Kozi horka in Brno. Parents met with physicians from the Paediatric Haematology Department of Brno University Hospital.

World Hemophilia Day Celebrations With Extraordinary Success

The fact that people with hemophilia gather around the world every year around 17 April is a long-standing tradition. However, the Czech Hemophilia Society, its sister organisation Hemojunior, with the support of pharmaceutical company Novo Nordisk, really hit the mark this time. A gathering was prepared for members and supporters on Saturday, 14 April, at the medieval Fortress Hummer near Prague.

Let's Celebrate World Hemophilia Day Together

Just like around the world, it has become a tradition here too. Following a series of successful previous gatherings, this time we invite you to the Hummer Fortress and Hummer Centre. The World Federation of Hemophilia has set the date as 17 April and recommends that celebrations take place around this day. The nearest weekend is the one before, so the big day for all members of the Czech Hemophilia Society and Hemojunior falls on Saturday, 14 April. More details in the attached invitation.

Off to Ondrášův Dvůr

Along with our new website, we bring news for everyone who would like to participate in the summer haemophilia camp at Ondrášův Dvůr. Registration is available online — do not hesitate, places are limited again.

Second Regional Workshop at Kundratice Spa

A Saturday full of information and good spirits - that was the second regional workshop. Sunny 24 September was marked by another round of regional workshops called "Together About Haemophilia", organised for its members by the association with the financial support of Bayer. This time in the picturesque Kundratice Spa in the Liberec Region.

The First Swallow Flew from Brno

The new programme of regional workshops for adults began yesterday. In Brno, a dozen South Moravian association members gathered at the Avanti Hotel to take advantage of the new opportunities. Everything was made possible thanks to Bayer, which covers all costs of the regional workshops. The four-star hotel in almost the very centre of Brno was the right choice. Participants had two large salons at their disposal - one for lectures and discussion, the other for rehabilitation. In addition, there was a sauna and whirlpool in the relaxation centre.

Lednice 2012

This year again, we invite you to the rehabilitation stay for adult haemophilia patients in Lednice. The stay will take place from 18 to 26 May. Based on the experience of high demand last year, we ask you to register as soon as possible.

Photo Gallery: Summer Camp 2011 – A Year in the Country

Photo gallery from the 2011 summer hemophilia camp "A Year in the Country" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation -- Lednice 2011

Photo gallery from the very first adult rehabilitation stay for hemophilia patients in Lednice, 2011. A historic milestone organized by the Czech Hemophilia Society.

Photo Gallery: Hemophilia Day – Western Town Boskovice

Photo gallery from the World Hemophilia Day 2011 celebrations at the Western Town in Boskovice.

Photo Gallery: Summer Camp 2010 – The Hobbit, Battle of Arcikam

Photo gallery from the 2010 summer hemophilia camp "The Hobbit, Battle of Arcikam" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation – Velke Losiny 2010

Photo gallery from the adult rehabilitation stay for hemophilia patients in Velke Losiny, 2010. Rehabilitation, hydrotherapy, and a rich social programme in this spa town beneath the Jeseniky Mountains.

Photo Gallery: Hemophilia Day – A Day at Prague Zoo

Photo gallery from the World Hemophilia Day 2010 celebrations – a day at Prague Zoo, where Novo Nordisk invited members of the Czech Hemophilia Society and Hemojunior.

Photo Gallery: Summer Camp 2009 – Dr. Vapna Sanatorium

Photo gallery from the 2009 summer hemophilia camp "Dr. Vapna Sanatorium" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation – Velke Losiny 2009

Photo gallery from the adult rehabilitation stay for hemophilia patients in Velke Losiny, 2009. Rehabilitation, group excursions, and relaxation in the Jeseniky spa town.

Photo Gallery: Hemophilia Day – A Day with Go-Karts

Photo gallery from the World Hemophilia Day 2009 celebrations – an afternoon of go-karting organized in cooperation with the CSH Council and sponsored by Bayer-Schering.

Photo Gallery: Summer Camp 2008 – Quest for the Holy Grail

Photo gallery from the 2008 summer hemophilia camp "Quest for the Holy Grail" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation – Velke Losiny 2008

Photo gallery from the adult rehabilitation stay for hemophilia patients in Velke Losiny, 2008. One of the earliest editions of the rehabilitation programme in this popular spa town.