News

Through Paradise, Preferably Barefoot

The highlight of the World Hemophilia Day celebrations was undoubtedly the gathering of Czech Hemophilia Society and Hemojunior members at the Zeměráj adventure park. The medieval village near the Orlice Dam came alive on the last Saturday of April with more than one hundred and fifty participants, who enjoyed a number of extraordinary experiences across the nine-hectare grounds. Not only children could try making fabric from wool and linen, spin a potter's wheel, or learn how people slept in 12th-century huts. At the archaeological site, we sifted through sand to find pottery shards, bones, coins, jewellery, and necklace beads, and could keep some as souvenirs.

April Belongs to People with Hemophilia

As has become a good tradition, people around the world who wish to commemorate World Hemophilia Day gather in April. It falls on the seventeenth day of the month and provides an opportunity for many interesting events -- some landmarks in world capitals even light up in red. It is no different here. In recent days, hemophilia has been the main topic of several social and sporting events.

A Slightly Rippled Surface on the South Bohemian Pond

In terms of the life of the haemophilia community, one of the quietest regions in the Czech Republic is precisely the South Bohemian one. There are no activities here, and very few Society members come from this area. This is one of the reasons why the Society directed another instalment of its regional workshops here, with the aim of helping local colleagues. It assembled the usual team of experts and reserved a meeting at the Hotel Podhrad in Hluboka nad Vltavou for as broad an audience as possible. Two direct participants wish to share their impressions.

The Campaign to Support Haemophilia Patients Reaches Its Peak

The second year of the “I Support Haemophilia Treatment” campaign is approaching the finish line, and once again this year you can express your support for haemophilia patients by purchasing charity items with the campaign logo. The entire campaign will culminate on Saturday 18 April with a charity football match FK Dukla Praha vs. FK Baumit Jablonec, dedicated to haemophilia patients. Visitors who arrive in a red T-shirt will get free admission. The football match will be preceded by a sports afternoon starting at 1 PM. You can look forward to famous sports personalities Věra Čáslavská and Ladislav Prášil. From 5 PM, the highlight of the day will take place — the match FK Dukla Praha vs. FK Baumit Jablonec, all at the Juliska stadium in Prague 6. See the attached invitation. For more information about the programme, visit www.podporujihemofiliky.cz or the official Facebook page of the campaign. Wear red and come support us! We hope to see as many of you as possible.

Invitation for All South Bohemians

For several years now, regional seminars have been organized by the Society with the aim of helping everyone dealing with hemophilia - not just members, but all who are affected by hemophilia - to navigate everything related to it. And also their partners, parents, friends - in short, anyone who is interested. In April, the meeting will take place in Hluboká nad Vltavou.

Honza Rousar and Guests

A benefit concert dedicated to the Czech Hemophilia Society and a CD launch. 17 April is International Hemophilia Day, and on this date a benefit concert and launch of a new album of songs and chansons by Honza Rousar will take place at the Zizkov Theatre in Prague. On the CD you will hear settings of texts by Milon Cepelka, Ester Kocickova, Vaclav Tobrman, and others.... Performers who contributed to this album include: Ondrej Ruml, Ruda z Ostravy, Vaclav Tobrman, Jakub Hubner, Ivana Korolova, Nada Valova, Eva Dvorakova, and Martina Trchova.

Discrimination Against a Chinese Student with Hemophilia

The Chinese newspaper Global Times reported that the Beijing Institute of Industrial Relations expelled 21-year-old Zheng Qing from his studies on 6 January because he has hemophilia. The now-former student reportedly intends to sue the university for unjustified discrimination. The university defends itself by citing a Ministry of Education directive from 2003 that states students may be rejected due to serious blood diseases, metabolic disorders, or rheumatic conditions.

Off to Zeměráj

Who would not want to spend lovely moments in a paradise where the diversity and beauty of Czech nature and history come together, where you can experience things not only through sight and hearing but also through your bare feet, hands, nose and taste! That is what this year's World Haemophilia Day promises. Come and try various games, puzzles, adventure tasks, or simply sit back and meet new and old friends in a realistically recreated setting of an early medieval village.

Read This

Nobody has doubted the usefulness and benefits of prophylaxis for a long time. However, not everyone knows exactly what this term means. That is why we are publishing an informational material from the World Federation of Hemophilia (WFH) that summarizes everything essential. You can read the text here on the website or download and print it.