11/04/2013
You Can Help Not Only Yourself
ČSH
We are reaching out to you through the Czech Hemophilia Society, which brings together patients, family members, and friends of those affected by blood clotting disorders.
- YOU CAN HELP TOO!
In the Czech Republic, there are approximately 100,000 people suffering from one of three forms of von Willebrand disease. We are among the European Union countries where the exact number of people suffering from this rare disease is not known. There are many men, women, and children who do not even suspect that something is wrong with their blood clotting. We are therefore reaching out to you with a request to provide general information about your von Willebrand disease. Thanks to this information, we will be able to determine not only how many individuals with this rare disease live in the Czech Republic, but it will also help us with much-needed public awareness.
- YOU CAN HELP YOURSELF TOO!
By actively participating, you will help not only other patients but also yourself. You will gain more information about this disease, current treatment trends, and you can also exchange your experiences and knowledge with other patients or their families, as well as specialists from among physicians, psychologists, and other therapists. Please fill in the attached questionnaire in electronic form.
Thank you very much for your cooperation.