CSH Board Meeting 28 November 2021

ČSH

Immediately after the end of the CSH Conference on 28 November 2021, a Board meeting took place in its new composition. The meeting was held in person.

Present: Martin Bohůn, Martin Žídek, Michal Skořepa, Marek Šimoník, Kateřina Altmanová

The meeting was chaired by Michal Skořepa

The Board discussed the following items:

Election of the Chair and Vice-Chair of the CSH Board
The Czech Hemophilia Society and Hemojunior Gala Evening event
World Haemophilia Day
Rejection of the grant application
Letter from UHKT
Remuneration for Martin Žídek for the new website

Michal Skořepa nominated Martin Bohůn as a candidate for Board Chair. Martin Bohůn nominated Martin Žídek, who declined the candidacy.

A vote was therefore held for the sole candidate Martin Bohůn.

All present voted in favour. Martin Bohůn abstained. No one voted against. Approved.

Michal Skořepa nominated Martin Žídek as a candidate for Vice-Chair. He accepted the candidacy. No other candidate came forward.

A vote was therefore held for the sole candidate Martin Žídek.

All present voted in favour. Martin Žídek abstained. No one voted against. Approved.

After extensive discussion among all members and given the current epidemiological situation, the Board proposed:

Cancellation of the Czech Hemophilia Society and Hemojunior Gala Evening, which was to take place on 18 December in Prague.

All present voted in favour. No one abstained. No one voted against. Approved.

Martin Bohůn proposed:

To increase the number of buildings illuminated for World Haemophilia Day. All members will endeavour to expand this number according to their possibilities.
He informed about the rejection of the Ministry of Health grant application for 2022. Once the notification arrives from the ministry, he will share it with all Board members.
He informed about a received request from UHKT for cooperation within the registry. It is necessary to clarify the details of how UHKT handles the data we provide.

Martin Bohůn proposed:

Remuneration for Martin Žídek in the amount of CZK 10,000 for the new website.

All present voted in favour. Martin Žídek and Kateřina Altmanová abstained. No one voted against. Approved.

Recorded by Marek Šimoník, verified by Michal Skořepa