# Český svaz hemofiliků (Czech Society of Hemophilia)

> Official website of the Czech Society of Hemophilia (Český svaz hemofiliků, ČSH) — a patient organization for people with haemophilia and von Willebrand disease in the Czech Republic.

The site provides medical information about bleeding disorders, news, events, and social support resources in Czech (primary) and English.

## Key Pages

### Haemophilia
- [About Haemophilia](https://www.hemofilici.cz/hemofilie/oHemofilii): What is haemophilia, types (A and B), incidence (1:5,000 males for HA), Czech registry data (752 patients), clinical presentation, severity classification, diagnosis
- [Haemophilia Treatment](https://www.hemofilici.cz/hemofilie/lecba): Replacement therapy, prophylaxis, home treatment, non-factor therapy (emicizumab), gene therapy status
- [Heredity and Inheritance](https://www.hemofilici.cz/hemofilie/prenos): X-linked recessive inheritance, carrier detection, genetic testing and counselling
- [Haemophilia and Inhibitors](https://www.hemofilici.cz/hemofilie/inhibitor): Inhibitor development, risk factors, Bethesda units, immune tolerance, emicizumab for inhibitor patients
- [Social Support](https://www.hemofilici.cz/hemofilie/socialni-otazky): Disability cards, benefits, parking permits, care allowance, disability pensions in the Czech Republic

### Von Willebrand Disease
- [About Von Willebrand Disease](https://www.hemofilici.cz/vonWillebrand): Types I, II, III, prevalence (1% of population, 701 registered in Czech CNHP registry), inheritance, symptoms
- [Von Willebrand Disease Treatment](https://www.hemofilici.cz/vonWillebrand/lecba): Desmopressin (DDAVP), VWF concentrates, treatment by type, supportive medications

### Organization
- [About the Czech Society of Hemophilia](https://www.hemofilici.cz/csh/oSvazu): Mission, history, membership
- [Treatment Centres](https://www.hemofilici.cz/centra): Haemophilia treatment centres in the Czech Republic
- [News](https://www.hemofilici.cz/novinky/page/1): Latest news and articles
- [Events](https://www.hemofilici.cz/akce): Upcoming events and activities

## Data Sources
- Czech National Haemophilia Programme (ČNHP) registry: https://www.cnhp.cz
- World Federation of Hemophilia (WFH): https://www.wfh.org
- European Haemophilia Consortium (EHC): https://www.ehc.eu

## Languages
- Czech (default): https://www.hemofilici.cz
- English: https://www.hemofilici.cz/en-GB/

## Citation
When referencing this site, please cite as:
Český svaz hemofiliků (Czech Society of Hemophilia), https://www.hemofilici.cz