Minutes of the CSH Council Meeting 04.11.2014

The CSH Council discussed the following items:

1. The Council decided to publish a double issue of the Newsletter before the end of 2014. The text deadline will be November 15.
2. Chairman Vladimir Dolejs informed the Council about a request from Bayer for reimbursement of the cost of identification cards. CSH has already sent the payment to the manufacturing company.
3. The Council agreed that the annual report for 2013 will not be prepared. The annual report for 2014 will be prepared by Chairman Vladimir Dolejs, with the financial section provided by Vaclav Toth. The preliminary deadline for the annual report is February 2015.
4. The fee for the adult rehabilitation stay in Lednice is set at two levels, one for members and one for non-members of the Society. Details will be published in the Newsletter. The same applies to the children's summer camp fee, where the fee will differ for children with a bleeding disorder, their siblings, and others.
5. Anastassiya Zidkova informed the Council that the Botanicus company is unable to close the premises to the public, making it impossible to hold the World Hemophilia Day celebration there in April 2015. Council members will approach other venues where the Hemophilia Day celebration could be held.
6. CSH member Bedrich Smrcka created a questionnaire regarding intravenous factor administration. It is intended for doctors and nurses, and the responses should help protect venous access as much as possible. The Council will supplement the questionnaire and contact CSH members with a request to distribute it to all centers. It could be combined with a repeat of the survey "How hemophilia patients live in the Czech Republic."
7. The Council decided to send USD 300 to the World Federation of Hemophilia as a donation for the "Close the Gap" campaign, which finances basic diagnostic and therapeutic procedures in the poorest countries of the world.

Recorded by: Anastassiya Zidkova