World Hemophilia Day

World Hemophilia Day

World Hemophilia Day is an annual international event held on April 17th. This day is dedicated to raising awareness about hemophilia and other inherited bleeding disorders.

History

World Hemophilia Day was first established in 1989 by the World Federation of Hemophilia (WFH). The date of April 17th was chosen to honor Frank Schnabel, the founder of WFH, who was born on this day.

Goals

  • Raise awareness about hemophilia and other bleeding disorders
  • Promote better diagnosis and access to treatment
  • Share knowledge and experiences
  • Create a global community of support

Activities

Each year, various activities take place worldwide, including:

  • Awareness campaigns
  • Patient and professional meetings
  • Sports events
  • Cultural programs
  • Fundraising activities

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    Hemophiliacs Climbed Ještěd as One Big Family

    16/04/2025
    Nearly 130 participants gathered on Saturday, April 12, for a group hike to Ještěd.
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    World Hemophilia Day Highlights Life with a Bleeding Disorder

    14/04/2025
    Every year on April 17, we observe World Hemophilia Day, a rare genetic disorder that affects blood clotting.
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    S Danem na Ještěd

    24/01/2025
    Světový den hemofilie oslavíme v roce 2025 společným výšlapem na Ještěd, který je určený pro všechny bez rozdílu kondice.
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    Světový den hemofilie 2024 v médiích

    26/04/2024
    Přehled mediálních výstupů v souvislosti s oslavami Světového dne hemofilie 2024 v ČR.
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