ERIN Summit 2026 in Prague: an opportunity for people with rare bleeding disorders

ČSH

This December, Prague will host the European ERIN Summit for people with haemophilia and inhibitors and extremely rare bleeding disorders.

The EHC ERIN Summit 2026 will take place at the Diplomat Hotel Prague on 4–6 December 2026. The European meeting is intended for people with haemophilia A or B with inhibitors, people with extremely rare bleeding disorders and, subject to the selection criteria, their family members or carers.

Examples of extremely rare bleeding disorders include deficiencies of fibrinogen and factors II, V, VII, X, XI or XIII, combined factor V + VIII deficiency, Glanzmann thrombasthenia, Bernard–Soulier syndrome and platelet storage pool deficiencies. This is not an exhaustive list.

What the summit will offer

The programme will combine practical information with patient experience. Topics will include developments in care, movement and physiotherapy, dental and psychosocial care, the path to diagnosis, self-advocacy and peer exchange. An important part of the summit will be meeting people facing similarly unusual circumstances and having a shared space for open discussion.

A dedicated children's area with volunteers will be available for families, with activities adapted to the ages of the registered children.

Practical information

Dates: 4–6 December 2026; arrival and registration on the evening of 3 December
Venue: Diplomat Hotel Prague, Prague
Language: English; Russian interpretation will be available, Czech interpretation has not been announced
Accommodation: arranged and paid directly by EHC; participants do not pay a hotel deposit
Travel: participants initially pay their own travel costs; EHC reimburses eligible expenses within the approved allowance after receiving the claim form and supporting receipts

ČSH may nominate up to four participants. Final acceptance is decided by EHC according to capacity and the selection criteria, so interested applicants are encouraged to get in touch as soon as possible.

Interested? Email info@hemofilici.cz or call +420 736 539 332. Use “ERIN Summit 2026” as the email subject.