Hemophiliacs Climbed Ještěd as One Big Family

The event was organized in celebration of World Hemophilia Day (April 17) and attracted people with hemophilia, their families, and other supporters from across the Czech Republic. The aim was not only to reach the summit of this well-known North Bohemian peak but, more importantly, to demonstrate that a fulfilling and active life is possible even with hemophilia.

From the very start, the mood was cheerful. Each participant received a symbolic red neckerchief with the event logo and a delightful surprise—a sweet snack for energy baked and prepared by Kamila Vejdová. Red, the color symbolizing hemophilia, was omnipresent, with attendees arriving in red shirts or sweatshirts. Together, both young and old, hemophiliacs, their loved ones, and medical professionals ascended the mountain.

The hike was more than just a physical challenge—it was an opportunity to connect the community across various age groups and different health conditions. Representatives from Pacimed, a patient organization supporting individuals coping with lifestyle-related diseases, came to show their support. Additionally, Dr. Eva Drbohlavová from the hemophilia center in Liberec and her colleagues joined the hike, offering valuable local advice during event preparations. Dr. Drbohlavová also delivered an engaging presentation on the latest advances in hemophilia treatment, providing attendees a unique opportunity to learn more about medical progress and ask pertinent questions. This professional insight was highly valued, making the event about more than physical accomplishment—it was also about exchanging information and experiences.

Jiří Pavlů, representing the mountain rescue service, informed participants about the history and current state of Ještěd, described the routes for the hike, and provided valuable safety advice for moving in mountain terrain.

For those unable to complete the ascent on foot, transportation to the summit was arranged. Additionally, Jana Svatošová, an expert in Nordic walking, accompanied participants, helping even less experienced hikers successfully reach the top. Ms. Svatošová ensured everyone's safety and comfort on the trail and shared important tips on effective walking techniques. The goal was to ensure the entire community could gather at Ještěd regardless of age or physical limitations.

This event built upon last year's international expedition, in which Daniel Šimek became the first Czech with hemophilia to attempt ascending Mont Blanc, Europe's highest peak. Šimek was among those present at Ještěd, accompanied this time by his family.

From the summit of Ještěd, besides the stunning views, a clear message resounded: Living with hemophilia does not mean giving up dreams and challenges—quite the opposite.