News

Joint Function in Haemophilia - Ankle

Recently, we introduced you to what happens to the knee joint during a bleed through an animated guide. Now we bring you the next instalment. We will look inside the ankle joint, examine a healthy ankle, explore what actually happens during a bleed, what complications it can lead to, how to manage ankle bleeds, and how to optimise joint function.

How to Advocate for Interests?

On the weekend of 5–7 December 2014, the "Advocacy in Action" workshop, organised by the World Federation of Hemophilia (WFH), took place at the Novotel hotel in Prague. As the name suggests, the topic was primarily advocating for the interests of haemophilia societies with decision-making institutions and communicating with the public. The Czech Republic was represented by delegates from the Czech Hemophilia Society; in total, 10 countries from Central and South-Eastern Europe and the Baltics participated in the workshop.

Lednice Again Next Year

As you already know, the next edition of the adult reconditioning program will also take place in Lednice. The dates are now confirmed as 15 to 23 May. There have been no changes in other organizational matters either. For those interested, we have prepared accommodation, breakfasts and lunches, individual rehabilitation (for hemophilia patients only), therapeutic baths, and a pool.

Summer Camp -- Back to Zubri Again

Dear campers, we are pleased to announce that the summer camp will take place as planned in 2015 as well. The Recreational Facility in Zubri in the Vysocina Highlands proved successful, so we have reserved it for the next two years. Next year we will return to the traditional two-week format, from 8 to 22 August. Those who plan to participate should keep this date in mind.

How We Met in Ostrava

The last major gathering of this year took place in northern Moravia, and the regional workshop attracted a truly large number of participants. Among them were two young members of the association who described everything they witnessed as follows. The original plan to use the facilities and services of the Klimkovice spa fell through, so we headed to the pleasant setting of the Imperial Hotel. Everything was organized in cooperation with the Hematology Department of Ostrava University Hospital and Baxter. Despite initial concerns about low registration numbers, what was probably the highest number of participants in the entire history of workshops attended.

Czech Republic Still at the Forefront

The regular congress of the European Haemophilia Consortium was hosted this time by Belfast in Ulster. It once again demonstrated that what the EHC promotes as progressive innovations and advocates for implementation in member countries mostly already works here. And well. The two main topics were: Pharmacokinetics and Extended Half-Life Products. In addition to the usual praise for prophylaxis, there were also several mentions of the importance of the psychological aspect of working with families and with people with haemophilia themselves.

Hemophilia Workshop with Ostrava University Hospital

In cooperation with the Hemophilia Center at Ostrava University Hospital and Baxter, we are organizing a regional meeting for colleagues in the Moravian-Silesian Region. We aim to help all hemophilia patients, their family members, and partners in managing their condition. Similar events have already been successfully held in the South Moravian, Liberec, and South Bohemian regions.

We Were Cheerful and Serious...

...but above all, for you. That was the name of the second edition of the gathering for all interested parties at the very nice Hotel Jezerka near Sec in eastern Bohemia. Last year the bar was set quite high, and this year — according to participant feedback — it was maintained. Defending is always far more difficult than starting. Once again, we can call the event a "meeting of generations." The age range covered virtually all categories and brought something for everyone. Again with an emphasis on the usefulness of the information provided, complemented by pleasant surroundings, an inviting wellness area, and hospitable treatment.

Zubří full of pirates and sailors

After years spent in the Beskydy Mountains, our camp moved a few kilometres further, to the Zubří recreational complex near Nové Město na Moravě. Here we spent just one week to try out the new environment and test our capabilities. The rich programme began on Saturday, 16 August, with an all-camp game launched by dividing the children and leaders into teams under the command of Baron Butterbrot Von Marmelade. In a themed setting, the Baron described his lifelong battle with the pirate Wilkinson and urged everyone present to help him find the way to the treasure, along with the promise of adventure on the shared journey.