News

Second Regional Workshop at Kundratice Spa

A Saturday full of information and good spirits - that was the second regional workshop. Sunny 24 September was marked by another round of regional workshops called "Together About Haemophilia", organised for its members by the association with the financial support of Bayer. This time in the picturesque Kundratice Spa in the Liberec Region.

The First Swallow Flew from Brno

The new programme of regional workshops for adults began yesterday. In Brno, a dozen South Moravian association members gathered at the Avanti Hotel to take advantage of the new opportunities. Everything was made possible thanks to Bayer, which covers all costs of the regional workshops. The four-star hotel in almost the very centre of Brno was the right choice. Participants had two large salons at their disposal - one for lectures and discussion, the other for rehabilitation. In addition, there was a sauna and whirlpool in the relaxation centre.

Vanity of Vanities

Over the past few weeks, you may have followed the exchange of opinions between the Czech Hemophilia Society Board and the State Institute for Drug Control (SUKL) on our website. You can see for yourself that SUKL is incapable of giving a simple answer to a simple question. The question was whether anything would change regarding the availability of home treatment with SUKL's new decision or not. A simple yes or no would have sufficed.

Lednice 2012

This year again, we invite you to the rehabilitation stay for adult haemophilia patients in Lednice. The stay will take place from 18 to 26 May. Based on the experience of high demand last year, we ask you to register as soon as possible.

Photo Gallery: Summer Camp 2011 – A Year in the Country

Photo gallery from the 2011 summer hemophilia camp "A Year in the Country" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation -- Lednice 2011

Photo gallery from the very first adult rehabilitation stay for hemophilia patients in Lednice, 2011. A historic milestone organized by the Czech Hemophilia Society.

Photo Gallery: Hemophilia Day – Western Town Boskovice

Photo gallery from the World Hemophilia Day 2011 celebrations at the Western Town in Boskovice.

Minutes of CSH Council Meeting, 20 February 2012

The Council again worked via teleconference. All members participated in the Skype conference of the CSH Council, namely Chairman Vladimír Dolejš, Vice-Chairman Martin Bohůn, Václav Tóth, Petr Grim, Michal Skořepa, and Jana Dvořáčková.

Photo Gallery: Summer Camp 2010 – The Hobbit, Battle of Arcikam

Photo gallery from the 2010 summer hemophilia camp "The Hobbit, Battle of Arcikam" at Ondřášův dvůr.