Podcast - Haemophilia Without Fear

Life with haemophilia has changed significantly in recent years. New treatment options bring patients and their families greater freedom, a chance for an active life and better management of everyday situations. In this episode of the "Na vlastní žíly" podcast, which is part of the Liberate Life project, we bring you an interview with two people who not only know haemophilia well, but help others cope with this diagnosis every day.

Katka Altmanová, chairwoman of Hemojunior and mother of two children, openly shares personal experiences and stories of other families. Martin Bohůn, chairman of the Czech Haemophilia Society, describes what it was like to grow up and live with severe haemophilia in the past and what enormous progress modern treatment has brought in the Czech Republic and Europe.

What will you learn in the episode and why not miss it?

• How properly set up treatment can significantly improve quality of life, enable children to go to kindergarten, school and play sports.
• Why the involvement of the whole family and sharing experiences with other patients and experts is crucial today.
• How to cope with the initial shock after diagnosis, where to find support and why contact with a patient organisation helps.
• How intergenerational meetings, reconditioning stays and professional events can help children and parents get rid of feelings of isolation and fear.
• Why it's not embarrassing to ask the doctor, discuss treatment options with them and actively participate in therapy decisions.

More information can be found on the podcast pages as part of the Liberate Life project.

All podcast episodes can also be found on our website.