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ČSH

The World Federation of Hemophilia has been collecting annual reports with hemophilia-related data for some time and processes them into comprehensive statistics. The data covers the years from 1999 to the present and it is particularly interesting to compare the trends. Statisticians are always somewhat behind, so now the complete data for 2013 has freshly appeared on the www.wfh.org website. They cover 107 countries and nearly 280,000 people, including of course our country. This time, the results are presented in the form of interactive graphs that everyone can customize to their liking.

Looking at the data is certainly very interesting and also says a lot about the level of care in WFH member countries. It once again confirms how fortunate we are to live in that quarter of the world where not only is hemophilia recognized, not only is the system capable of identifying those affected, but it is also able to provide them with adequate treatment. Let us not forget that the vast majority of humanity has only ice available, or at best limited plasma resources.

The 2013 data should be viewed with the awareness that in two years the situation has changed in many places. For example right here at home, because compared to the data at that time on the consumption of treatment concentrate units of Factor VIII and IX, the quantities have now increased significantly. The consumption per capita of a given country is in fact an internationally recognized criterion for the level of treatment. The graphs are available at https://www.wfh.org/en/resources/annual-global-survey.