First Regional Meeting of Haemophilia Patients in the Hradec Králové Region

ČSH

In a short period of time, we would like to invite you once again to the capital of the Hradec Králové Region. Although haemophilia was discussed in Hradec Králové recently, this time we are meeting for a different reason — the next instalment of our regional workshops. We would like to invite not only adult haemophilia patients with companions, but also paediatric haemophilia patients accompanied by their parents (or parents alone). Participants will have the opportunity to meet specialists from the local haemophilia centre who help haemophilia patients address their health issues.

Participants will be able to gain practical experience with suitable rehabilitation techniques and, under the supervision of experienced nurses, practise the application of concentrates on hand models.

The event will take place on World Haemophilia Day, that is 17 April from 1:30 PM to 6:00 PM at the Training Centre of the University Hospital Hradec Králové. Registration is required. More information can be found in the attached invitationhere!

PROGRAMME:

Doc. MUDr. Pavel Žák, Ph.D. – opening remarks
Doc. MUDr. Petr Dulíček Ph.D.: Haemophilia Treatment in Eastern Bohemia 1989–2017 /15 minutes/
Doc. MUDr. Petr Dulíček, Ph.D.: Treatment Options for Haemophilia in the Near Future /10 minutes/
MUDr. Zuzana Fiedlerová: Hepatitis C and Haemophilia /10 minutes/
MUDr. Eva Ivanová: New Directions in Haemophilia Treatment /15 minutes/
Mgr. Michal Skořepa, Mgr. Lukáš Koblasa: Activities of the Czech Hemophilia Society in Our Region and Identifiers for Emergency Services and Urgent Medicine /30 minutes/
Mgr. Marie Katzerová: Rehabilitation for Haemophilia Patients /25 minutes/
MUDr. Jiří Hak: Pharmacokinetics in Paediatric Haemophilia Treatment /10 minutes/
s. Kateřina Krupová: Venous Access in Haemophilia Patients /10 minutes/
s. Jiřina Vašátková: Application of Concentrates — Practical Aspects /10 minutes/

Individual consultations with specialists: rehabilitation, concentrate application training, haemophilia treatment /30 minutes/

Event sponsors: Main sponsor: Shire Others: Octapharma, Pfizer, Novo Nordisk, Grifols, Roche, Sobi, Bayer