Useful Links

ČSH

Learning something new is always worthwhile. We have two tips for you on where to find interesting and useful information. The World Federation of Hemophilia (WFH) has published a long series of materials summarising absolutely everything one needs to know about haemophilia and von Willebrand disease. These are resources of various levels and for various audiences, from members of the general public to professionals. Much of the information is of course basic, but it is not without reason that physicians, physiotherapists, nurses, laboratory technicians, and other specialists draw from these sources. The database of texts, tables, images, and videos is constantly expanding and is available mainly in English, but also in French, Spanish, and Chinese.

Under the link http://elearning.wfh.org you will find a rich directory that will guide you to exactly the material you need. And even if you do not need to look up anything specific right now, browse the extensive catalogue -- something may catch your interest after all.

The next link primarily contains images. From these, you can see what the joints of a healthy person look like, how haemophilic joints appear at different ages, under various levels of strain, and so on. You progressively select age, predominant physical activities, and more. This way, everyone can easily find out what likely awaits them and how far in the future. Give it a try and open http://hjv.bayer.com/.

Our Society also regularly participates in the very extensive annual WFH survey, where data from individual member countries is collected. This data shows how many people with haemophilia there are in each country, broken down by age and type, what treatment they receive, in what quantities, and so on. Collecting data from around the world is presumably very demanding, including the creation of informative graphs, so the finished work can always be published only in the autumn of the following year. Just now, the summary of data for 2015 has been released and is available for everyone to review online at http://www1.wfh.org/publications/files/pdf-1669.pdf -- it certainly provides an interesting perspective for anyone with even a passing interest in bleeding disorders. It covers not only haemophilia, but also von Willebrand disease, among others.