The Big Paris Topic

ČSH

At the recent World Federation of Hemophilia (WFH) congress in Paris, among other topics, speakers and exhibiting companies focused on the electronic communication between treatment centres and their patients. It is something similar to what already works in our country and what we have written about several times -- the electronic database and factor concentrate consumption reporting system. It is obvious that the entire world is heading in this direction, and those who have not yet started will have to do so very soon.

Some manufacturers of derivatives -- first and foremost Bayer -- have already prepared applications in cooperation with phone manufacturers that, once installed, allow users to very easily send a report about each infusion immediately to their treatment centre. The programme is designed so well that you only need to select and tick boxes. It even includes a sketch of the human body, and by touching the relevant part, the system informs the centre of the reason for the infusion.

If some of our treatment centres resist such development today, it is highly short-sighted. It will happen eventually anyway. It is similar to how in the century before last, villages opposed railway lines on their territory, and the result is that today their stations are sometimes kilometres away from the town or village.

Nor does the argument about data collection for statistics hold up, because after implementing a suitable programme at the centre, machines do everything for humans. Including the creation of statistical reports.