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07/11/2017

Do You Know What Haemophilia Is? Siblings Will Give You a Hint.

ČSH

Do You Know What Haemophilia Is? Siblings Will Give You a Hint.

When a person with haemophilia is injured, they do not bleed faster or more than healthy people -- the difference is that they bleed longer. Small cuts or superficial bruises are usually not the main concern, but larger injuries and traumas mean more serious bleeding. This is the definition that most clearly describes this condition. But when you ask people on the street, most cannot imagine anything at all. Siblings Tereza and Lukas Koblasovi, both members of our Society, decided on their own initiative to raise public awareness of this rare disease by hosting a joint talk on Saturday 2 December 2017 from 5:00 to 10:00 PM at NaPLAVKA cafe & music bar in Hradec Kralove. The head of the local haemophilia treatment centre, Doc. MUDr. Petr Dulicek, has also confirmed his attendance.

Part of the programme will include a sales exhibition of paintings from the AMAG studio in Nachod and children from the Summer Haemophilia Camp, which will run throughout December at NaPLAVKA cafe. The vernissage will also take place on the first Saturday of December in the afternoon. The band Zivy Jukebox of Honza Rousar will perform at the benefit concert. Through voluntary admission, you can support the Czech Hemophilia Society in its efforts toward unified identification and awareness for haemophilia patients in case of injuries and other acute events.

Everyone interested in the topic is invited, as long as the distance to Hradec Kralove is not an obstacle. There is plenty of room; no tickets or seat reservations are necessary.