Advanced School of Haemophilia

ČSH

The regional seminars for patients registered at individual centres have reached Prague. Invitations were sent to those who attend the Institute of Haematology and Blood Transfusion (ÚHKT) and the children's centre at Motol. Once again with the support of Baxalta (formerly Baxter), they gathered at the Andel's Hotel in Smíchov, near the Anděl metro station. The programme remained traditional, but the content turned out to be somewhat unconventional. Although the format was also slightly different - this time participants did not have to give up a weekend, but rather a Wednesday afternoon. This proved to be a good choice, as not everyone - whether invited experts or attendees - is willing to sacrifice an entire day off.

It must be said that those who came did not regret it. At first glance, the topics might seem well-worn, but this time everything was different. Peter Salaj from ÚHKT and Vladimír Komrska from Motol spoke in general terms, but both brought new perspectives to well-known subjects. The audience's reactions confirmed this - they made it clear that there was something they had not heard before.

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The same applies to Petr Teyssler's exhaustive orthopaedic overview. He presented a wide range of possibilities through which modern orthopaedics can help people with haemophilia. And it is far from being just about the last resort - total joint replacements.

To prevent things from reaching that point, rehabilitation helps. Martin Mužíček specialises in physiotherapy specifically for haemophilia patients at ÚHKT and came with a new programme that he and the thrombosis and haemostasis department have prepared. The doors are open to everyone - they just need to walk through them.

A physician from the pain treatment centre at Bulovka Hospital also made several remarks, but their content was unfortunately only general and did not provide many specific recommendations.

On the other hand, Marcela Štáfová from the Labour Office, well known to association members, proved very useful. She did not bring any groundbreaking news in the social area, but devoted herself to individual consultations and advice for everyone who needed and expressed interest.

All in all, it has been a long time since a meeting with experts was so packed with information and specific advice as this one. Let us hope that in other regions the seminar programme will enjoy the same success as in Prague. The association's Council is already thinking about where the next one will take place - again in cooperation with Baxalta.