Minutes of CSH Council Meeting, 3 December 2015

The CSH Council discussed the following items:

1. V. Tóth collected financial documents from Council members for accounting.
2. The CSH Council confirmed the Chairman PhDr. Vladimír Dolejš as the statutory representative of the association.
3. The Council authorised the Chairman to negotiate with ÚHKT regarding the conclusion of a lease agreement for the purposes of registering the association in the register of associations.
4. The Council authorised the Chairman to complete the process of registering the CSH in the register of associations.
5. In cooperation with Hemojunior, a Gala Evening will take place on 19 February 2016 at the Alcron Hotel. Hemojunior Chairman M. Bereň will specify the conditions under which the Alcron will prepare the setting by mid-December. Depending on the outcome, the chairmen of both organisations will decide on the amount of the participation fee to be collected from each attendee.
6. The organisers will invite all members of both the CSH and Hemojunior, and will also send two complimentary tickets to each haemophilia centre and to all major sponsors.
7. The Council authorised the Chairman and Vice-Chairman to extend the contracts for loaned continuous passive motion (CPM) devices to the centres at ÚHKT Prague and Brno University Hospital. At the same time, they will request the conditions under which these centres lend them to interested parties, and the Council will publish these on the website.
8. The Chairman will check with the Norwegian association regarding the type of ultrasound device for detecting bleeding, and the CSH will subsequently seek to make this method available for home use.
9. The Council will develop a manual for members - haemophilia patients - with the basic minimum of entitlements they can exercise at their centres. This will establish a minimum standard to which everyone is entitled. Council members will send their proposals to the Chairman by 15 December; he will then compile them into a draft comprehensive document and present it to the Council for approval. Afterwards, the principles will be sent to the Czech Society of Haematology and the Society for Thrombosis and Haemostasis for endorsement. At the end of the process, everyone will be able to use this document at their centre.
10. M. Skořepa informed about the possibility of replacing Lednice for the spring adult rehabilitation stay with a new venue at the Ohrada Guesthouse in Vísky near Letovice. The Council agrees with the proposal and instructs M. Skořepa to finalise the exact conditions, environment and facilities with the guesthouse management so that they meet the participants' needs as much as possible. Prices will remain the same as the previous year.
11. Review of previous minutes: V. Tóth and P. Grim added email addresses to the membership database; V. Tóth's task to inventory membership fees continues.
12. After the end of the calendar year, the Chairman will prepare the CSH annual report; V. Tóth will add the financial overview.

In Vráž, 3 December 2015

Recorded by: V. Dolejš Verified by: M. Bohůn