News

The Pharmacokinetics Project Is Getting Underway

As we promised in the latest Newsletter, the Czech Hemophilia Society together with the Institute of Hematology and Blood Transfusion in Prague is launching the possibility of determining the survival and clearance curve of administered clotting factors in adults. Anyone who requests it in agreement with their center can sign up. Pharmacokinetic tests have been very popular worldwide recently, and for good reason. Every organism reacts differently to the administered factor, and the dosage and frequency are determined accordingly. According to research, almost nobody has their dosing right when following a standard regimen.

Art Competition "What Is Your Dream"

That is the name of the art competition prepared by Octapharma in cooperation with the Haemophilia Foundation Australia (HFA). Children from all World Federation of Hemophilia (WFH) member countries can enter the competition in three categories. All artworks will be exhibited in May at the World Hemophilia Congress in Melbourne, Australia. And how can you get involved? It is simple. Print out the picture template, which along with the rules you will find later in this article, and draw your dream. There are attractive prizes to be won.

A Sunny Haemophilia Weekend

The second November weekend belonged to everyone who wanted to learn about new developments in haemophilia treatment -- above all, to obtain information about current changes in social affairs, to discover the importance of psychological counselling in managing this disease, or to meet friends and exchange experiences with each other.

Minutes of the CSH Council Meeting 13.10.2013

Minutes of the CSH Council session in Vráž, 13 October 2013. Present: Vladimír Dolejš, Martin Bohůn, Petr Grim, Anastassiya Zidkova, Michal Skořepa, Jana Kalábová. Excused: Václav Tóth

The Time Has Come for Greater Efficiency

The efficiency of treatment with concentrates, whether plasma-derived or recombinant. The demand for better use of products does not come from developing countries, but from developed ones. Even there, they recognise that the economics of treatment plays an important role and that with the same resources, a better outcome can ultimately be achieved. But it is not just about cost-effectiveness — it is also about greater comfort.

Interesting News from the EHC Congress in Bucharest

Participants of last year's annual conference of the European Haemophilia Consortium somewhat nostalgically recalled the days spent in Prague the previous October. Our capital city is not only more interesting than the Romanian one, but the conference programme at the time also better reflected the real needs and demands of the contemporary perspective on haemophilia.

What the World Is Working On

The World Federation of Hemophilia organizes so-called Global Forums in odd years between its regular annual conferences. Usually at its headquarters in Montreal — and so it was this year as well. And the topic? Safety and availability of treatment products. It may seem that everything has long been resolved, but it has not.

We Are Here for You

In other words, a discussion about everything that interests you in connection with haemophilia. We offer you another opportunity to make contact not only with fellow patients with the same condition, but also with specialists. The lack of information and contact with people in a similar situation is keenly felt. Family members, partners, and friends of haemophilia patients who want to be a source of support for their loved ones feel this strongly as well. That is why we consider every personal meeting a significant benefit for members and for the society itself.

Those Who Didn't Come May Regret It

We are talking about the annual Conference of the society, which took place on Saturday and Sunday, 14 and 15 September, in Vráž near Písek. It was preceded by a massive information campaign through personal letters, on the pages of the Newsletter, and on the website. Nevertheless, not as many people came as expected. Despite zero costs, only a small portion of members were enticed.