Try the Electronic Registration

ČSH

For years we have been promising the possibility of electronic reporting of concentrate consumption and online access to basic data. It is finally here - you can try it out. The Institute of Biostatistics and Analyses in Brno has prepared a database that can be used jointly by haemophilia centres and their patients. Everyone needs to ask their centre to set up and provide access to the registry. The centre will enter all the data it normally keeps in the patient file. Most importantly, everyone will have access to their basic data anywhere in the world.

The Institute of Biostatistics and Analyses in Brno has prepared a database that can be used jointly by haemophilia centres and their patients. Everyone needs to ask their centre to set up and provide access to the registry. The centre will enter all the data it normally keeps in the patient file. Most importantly, everyone will have access to their basic data anywhere in the world.

We know well that in case of emergency, communication with doctors can sometimes be difficult - both abroad and even at home. They simply do not have enough information. Now, in addition to the identification card that anyone can request from the Czech Hemophilia Society, there will also be a more comprehensive medical record.

For haemophilia patients and patients with von Willebrand disease, it will now be possible to record concentrate consumption online using the appropriate electronic form. This eliminates the need to fill in the paper form. Each centre will thus have an ongoing overview of concentrate consumption by its patients. This will also encourage them to fill in records according to actual usage rather than entering them all at once during the next visit to the centre for another dose of derivatives.

This is another step towards catching up with developed countries, where something similar has been functioning for a long time. Try it out by visiting https://trials.cba.muni.cz/trialdb2/interface_forms/login_cnhp.asp, where you can learn more about the system. The login credentials are as follows: Login: CNHP_PATIENT Password: TEST

A detailed user manual is also available, which we have published on our website among other useful links in the Documents section, or you can open it directly via this link.