News

Adult recreation 2023

From 13th to 19th May in Bystré near Polička another convalescent stay of adult haemophiliacs took place.

Haemophilia podcast with former Minister of Health

In today's episode of our podcast, the moderator Michal Bereň delves into the world of haemophilia in an interview with a prominent expert on the topic, former Minister of Health, haematologist, coordinator of the Czech National Haemophilia Programme and active participant in patient organisations, doc. MUDr. Jan Blatný, Ph.D.

Educational meeting for women living with bleeding disorders - part three

We are pleased to invite you, dear women, to the next educational meeting, which will take place again in Jihlava (EA Bussines hotel), in the term 19.-21.5.2023.

Celebrate World Hemophilia Day With Us

We would like to involve members of the Czech Hemophilia Society and Hemojunior, as has become customary in previous years.

ERIN for the First Time, Definitely Not the Last

After two years, a meeting of people with hemophilia and inhibitors took place in Barretstown, Ireland (European Rare and Inhibitor Network Summit).

Podcast on the Evolution of Haemophilia Care and Options from Socialism to Today

This time, host Michal Bereň talks to two guests who have experienced first-hand the care of a haemophilia patient over the past few decades.

Educational and recreational stay in Srby

I would like to share with you my experience with participation in the educational-recreational stay in the hotel Astra Srby (Kladno district) organized by the PACIMED patient organization in cooperation with the University of Medicine Prague and the Diabetology Center of the 3rd Internal Medicine Clinic of the General University Hospital Prague at the end of last year.

Adult recreation 2023

For the third time we will visit Hotel Bystré in the village of the same name, near Polička.

Summer haemophilia camp returns to Zubri in 2023

After a one-year break we are returning to Zubří in Vysočina. For all participants who have already been here, this is certainly welcome news. The team of counselors and medical staff will welcome the campers on Sunday, July 9 and the stay will end on Friday, July 21.