News

Good News - The Summer Hemophilia Camp in 2024 Will Be in Zubri Again!

The uncertainty surrounding the location of the 2024 summer hemophilia camp has been resolved, and we are happy to announce to all participants that the next edition will take place at our tried-and-tested and beloved RS Jasenka complex in Zubri in the Vysocina region, from 21 July to 2 August 2024. Daniel Simek will once again be the head counselor, and medical supervision will again be provided by the University Hospital Brno under the leadership of doc. MUDr. Jan Blatny, Ph.D. and physiotherapist Mgr. Marie Katzerova.

Podcast about Living with Von Willebrand Disease

Today we bring you a special episode in which we won't be focusing directly on hemophilia, but on another bleeding disorder - Von Willebrand disease.

Women and rare bleeding disorders

On the occasion of International Women's Day, we are sharing EHC information on how a woman can recognise that she may be suffering from a rare bleeding disorder and should consult a doctor.

Worry-Free Holiday

Slowly but surely, the summer holiday season is approaching. It is therefore worth reminding ourselves of the basic travel guidelines for people with hemophilia or von Willebrand disease.

With haemophilia, even to the summit of Mont Blanc?

Why not? This unique opportunity is available to nine selected individuals with bleeding disorders from across Europe.

End of the Year 2023

Read the New Year's greeting from the Chairman of the Czech Hemophilia Society, Martin Bohůn.

New Technologies in Treatment 2023

New developments in non-factor therapy, rebalancing therapy, gene therapy or artificial intelligence. These and other topics were discussed at the workshop on new technologies in the treatment of rare bleeding diseases, held in Lisbon, Portugal, November 3-5, 2023.

Gala Evening 13 January 2024

We are immensely pleased to invite you once again, after a brief hiatus, to the gala evening of the Czech Hemophilia Society and Hemojunior.

Minutes of the CSH Conference 22.10.2023

Minutes of the Czech Hemophilia Society Conference held on 22.10.2023 in Jihlava.