Stronger Together
Voluntary organization for people interested in Hemophilia and von Willebrand disease. Our mission is to inform members about everything that interests them and defend their needs.
Together Stronger
Jested Meetup, 2025
In the Spotlight
podcast
Podcast - Life of a Haemophiliac in the Mirror of Modern Medicine
In this episode of the Na vlastní žíly podcast, host Michal Bereň, together with Dr. Radomíra Hrdličková, a leading haematologist from the University Hospital Ostrava, brings a new perspective on life with haemophilia. They discuss the latest treatment methods, prophylaxis, ultrasound examination of joints, and provide practical advice for patients and their families.
léčba
Gene Therapy - A Practical Guide
We bring you a new publication—a translation of a practical guide on gene therapy published as part of the EHC’s editorial activities.
News
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Invitation to Social Evening 2026
After two years, we are changing the venue and inviting you to a new, exceptional space. The Social Evening will take place on February 14, 2026 – Valentine's Day – at the elegant Hotel Juliš on Wenceslas Square in Prague.
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Interview with Anna Franziska Fleming
Anna Franziska Fleming is a 33-year-old German woman with severe hemophilia A. In this interview, she shares her life with this rare diagnosis, her love for mountaineering, and her abalone tattoo – a sea creature that has no blood coagulation.
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News in Hemophilia and von Willebrand Disease Treatment 2025
This year, the traditional workshop on new technologies in hemophilia and von Willebrand disease treatment was held under the auspices of EHC in Ljubljana, Slovenia. We bring an overview of news from rebalancing therapies through gene therapy to expanding prophylaxis options for VWD.
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New CSH Bylaws 2025
Overview of changes to the Czech Hemophilia Society bylaws approved at the Conference on 8 November 2025 in Jihlava.
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CSH Conference 8.11.2025
Minutes and documents from the Czech Hemophilia Society Conference held on 8 November 2025 in Jihlava.
Read moreUpcoming Events
Social Evening 2026
We cordially invite you to the Social Evening, which will take place on February 14, 2026 at Hotel Juliš in Prague.
Recondition 2026
Rekondiční pobyt dospělých proběhne v termínu 8.5.-15.5.2026 v Klatovech.
Hemophilia summer camp 2026
The Hemophilia summer camp will take place 19th Jul - 31st Jul 2026.
What is Hemophilia and Von Willebrand Disease?
Hemophilia and von Willebrand disease are rare genetic disorders where blood clotting doesn't work properly. While they present challenges, modern medicine and a strong community enable patients to live fulfilling lives.
Explanation of genetic inheritance
Latest treatment and prophylaxis options
Comprehensive care centers in the Czech Republic