Stronger Together
Voluntary organization for people interested in Hemophilia and von Willebrand disease. Our mission is to inform members about everything that interests them and defend their needs.
Together Stronger
Jested Meetup, 2025
In the Spotlight
podcast
Podcast - Life of a Haemophiliac in the Mirror of Modern Medicine
In this episode of the Na vlastní žíly podcast, host Michal Bereň, together with Dr. Radomíra Hrdličková, a leading haematologist from the University Hospital Ostrava, brings a new perspective on life with haemophilia. They discuss the latest treatment methods, prophylaxis, ultrasound examination of joints, and provide practical advice for patients and their families.
léčba
Gene Therapy - A Practical Guide
We bring you a new publication—a translation of a practical guide on gene therapy published as part of the EHC’s editorial activities.
News
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New members portal — profile, discussions and fees in your browser or as an app
07/04/2026We have launched the CSH members portal — it works in any browser on your computer or phone, and on mobile you can also add it to your home screen as an app.
Read more - whdakce
We will celebrate World Hemophilia Day with a hike to Zvičina
10/03/2026Following last year's successful hike to Ještěd, we continue the tradition of outdoor gatherings. This year we head to the Krkonoše foothills to climb Zvičina on the occasion of World Hemophilia Day. The event takes place April 10–12, 2026 with accommodation in Velichovky Spa.
Read more - lht
Summer Haemophilia Camp 2026
04/03/2026The 2026 Summer Haemophilia Camp will traditionally take place at our tried-and-tested and popular Jasenka Recreation Centre in Zubří in the Vysočina Highlands from 19 July to 31 July 2026.
Read more - akcefotogalerie
Seventh CSH and Hemojunior Gala Evening at Hotel Juliš
16/02/2026On Saturday 14 February, the seventh annual gala evening of the Czech Haemophilia Society and Hemojunior took place, this time at Hotel Juliš on Wenceslas Square in Prague. Approximately 80 guests attended the event.
Read more - cena
Annual Award of ČSH and Hemojunior
16/02/2026At this year's gala evening in Prague, we had the great honour of recognising our long-standing member Mr Zdeněk Březina, who was presented with the Annual Award of the Czech Haemophilia Society and Hemojunior.
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Adult Reconditioning Stay 2026
09/02/2026Based on a survey among participants of last year's adult hemophilia stay, we are returning to the wellness Hotel Centrál in Klatovy. This time we will meet from May 8 to 15, 2026.
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Upcoming Events
Hike to Zvičina – World Hemophilia Day 2026
Group hike to Zvičina on the occasion of World Hemophilia Day. April 10–12, 2026, accommodation at Velichovky Spa. Registration by March 23.
Adult Reconditioning Stay 2026
The adult reconditioning stay will take place from May 8 to May 15, 2026 in Klatovy.
Hemophilia summer camp 2026
The Hemophilia summer camp will take place 19th Jul - 31st Jul 2026.
What is Hemophilia and Von Willebrand Disease?
Hemophilia and von Willebrand disease are rare genetic disorders where blood clotting doesn't work properly. While they present challenges, modern medicine and a strong community enable patients to live fulfilling lives.
Explanation of genetic inheritance
Latest treatment and prophylaxis options
Comprehensive care centers in the Czech Republic