News: podcast

Podcast - Life with Haemophilia Without Borders

In the second part of a special two-part episode of the Na vlastní žíly podcast, we meet with Kateřina Altmanová (Hemojunior) and Martin Bohůn (Czech Haemophilia Society). Together they talk about the importance of patient organisations, summer haemophilia camps, challenges and hopes related to funding, and inspiring stories of people who show that you can live life to the fullest with haemophilia.

Podcast - Haemophilia Without Fear

A conversation about how haemophilia affects the daily lives of patients and their families. Experiences are shared by Katka Altmanová, chairwoman of Hemojunior, and Martin Bohůn, chairman of the Czech Haemophilia Society – both have lived with haemophilia in their families for generations. A friendly conversation full of hope, practical advice and personal stories awaits you.

Podcast - Haemophilia Takes, But Also Gives

In a new episode of the Na vlastní žíly podcast, host Michal Bereň talks with Michal Skořepa – a person with haemophilia who has dedicated decades to serving the community. They discuss childhood with the diagnosis, the transition to home treatment, sports and the importance of patient organisations. A friendly and inspiring conversation that will encourage everyone living with haemophilia.

Podcast - Life of a Haemophiliac in the Mirror of Modern Medicine

In this episode of the Na vlastní žíly podcast, host Michal Bereň, together with Dr. Radomíra Hrdličková, a leading haematologist from the University Hospital Ostrava, brings a new perspective on life with haemophilia. They discuss the latest treatment methods, prophylaxis, ultrasound examination of joints, and provide practical advice for patients and their families.

Podcast about Family Life with Hemophilia

Listen to an inspiring interview about life with hemophilia, family dynamics, and finding balance between the diagnosis, an active lifestyle, and family well-being.

Podcast with Dan about Mont Blanc

In the latest episode of the podcast "Na vlastní žíly" ("In My Own Veins"), host Michal Bereň presents an inspiring interview with hemophiliac Dan Šimek. Together, they embark on a journey of overcoming obstacles as Dan shares his experiences of climbing Mont Blanc.

Hemophilia from a Psychologist's Perspective

In a new episode of the podcast "Na vlastni zily" (In Our Own Veins), host Michal Beren, himself a hemophilia patient and father of a child with hemophilia, meets with psychologist Petra Buckova.

Podcast with Young Athlete Dan

That sport can now be an integral part of the lives of today's young hemophilia patients is something Daniel Šimek will convince you of in this interview.

Podcast about Living with Von Willebrand Disease

Today we bring you a special episode in which we won't be focusing directly on hemophilia, but on another bleeding disorder - Von Willebrand disease.

Podcast with a haemophilia carrier

In this episode, host Michal Bereň talks to Verka, who has two hemophiliac sons. She came all the way from Moravia to share her story about the challenges she faces as a mother of a haemophilia carrier.

Haemophilia podcast with former Minister of Health

In today's episode of our podcast, the moderator Michal Bereň delves into the world of haemophilia in an interview with a prominent expert on the topic, former Minister of Health, haematologist, coordinator of the Czech National Haemophilia Programme and active participant in patient organisations, doc. MUDr. Jan Blatný, Ph.D.

Podcast on the Evolution of Haemophilia Care and Options from Socialism to Today

This time, host Michal Bereň talks to two guests who have experienced first-hand the care of a haemophilia patient over the past few decades.

Podcast with Petr, Ondřej and Martin

Moderator Michal Bereň talked about life with three young haemophiliacs - Petr Altman, Ondřej Svoboda and Martin Čajánek.

Podcast with Jindřich Sitta

When Jindřich Sitta suggested at one of the Hemojunior patient organisation meetings that he would like to host experiential stays for fathers and sons with hemophilia on his family farm, he did not receive much understanding from the female members present. However, the pilot year was so successful that mothers now willingly sign up their sons and husbands for the weekend camps themselves.

Podcast with Marie Katzerová

For an active and fulfilling life for hemophilia patients, not only consistent application of clotting factor is important, but also regular exercise, including activities focused on joint health care. In the seventh episode of our podcast Na vlastní žíly, we discussed the indispensable role of physiotherapy in preventing and treating joint problems with physiotherapist Marie Katzerová.

Podcast with Veronika Čepeláková

Few people know as much about the administration of prophylactic injections as nurse Veronika Čepeláková. Since the early 1990s, when prophylaxis began to become a routine part of hemophilia treatment, she has helped dozens of children and their parents overcome uncertainty and fears about administering injections. She has now shared her experience working with young patients and their families with the listeners of the podcast Na vlastní žíly.

Podcast with Zdeněk Březina

Dozens of bleeds per month, long hospital stays, limb immobilisation in plaster casts, and no painkillers. That was the childhood of hemophilia patient Zdeněk Březina, who grew up during the era of deep socialism. Despite these experiences, he is a great life optimist, and as he says himself, thanks to modern medicines his great life dream finally came true.

Podcast with Vojtěch Horník

Hemophilia is an integral part of Vojtěch Horník's life, but he does not see it as an obstacle to achieving his personal or professional dreams. And as he says himself, the disease gave him the opportunity to get involved in activities and meet people he would never have known without it.

Podcast with Martin Bohůn

What is the key to a fulfilling life with this rare disease? "It is important to accept it as part of your life, consistently follow your treatment, and have someone to turn to for help and support," says the chairman of the Czech Hemophilia Society and guest of the third episode of the podcast Na vlastní žíly, Martin Bohůn. He discussed his personal experience with the disease and his work for the hemophilia community with the show's host Michal Bereň.

Podcast with MUDr. Ester Zápotocká

While Czech hemophilia patients have access to the latest treatment products, globally only one in ten hemophilia patients is properly treated. "In this regard, we live in a very exceptional country," praises the availability of the most modern treatment in the Czech Republic paediatric haematologist MUDr. Ester Zápotocká, who was the guest of the second episode of the podcast Na vlastní žíly. The show's host Michal Bereň talked to her not only about the therapy of this rare bleeding disorder.

Podcast with Hemojunior Chairwoman Kateřina Altmanová

A healthy person has a hundred little men in their blood who rush to a wound to seal it, while a hemophilia patient has only one such little man. This is how simply the chairwoman of Hemojunior, Kateřina Altmanová, explains the concept of hemophilia to the youngest children. She is the first guest of our new podcast Na vlastní žíly. Its host is hemophilia patient and former Hemojunior chairman Michael Bereň, who invites interesting personalities from the field of hemophilia to the microphone to discuss important and unusual topics related to this disease.