News

New CSH Bylaws 2025

Overview of changes to the Czech Hemophilia Society bylaws approved at the Conference on 8 November 2025 in Jihlava.

CSH Conference 8.11.2025

Minutes and documents from the Czech Hemophilia Society Conference held on 8 November 2025 in Jihlava.

Intergenerational Meeting 2025

The Czech Haemophilia Society in cooperation with Hemojunior has prepared the 11th edition of our largest annual event, which brings together people with haemophilia and von Willebrand disease across generations.

Podcast - Life with Haemophilia Without Borders

In the second part of a special two-part episode of the Na vlastní žíly podcast, we meet with Kateřina Altmanová (Hemojunior) and Martin Bohůn (Czech Haemophilia Society). Together they talk about the importance of patient organisations, summer haemophilia camps, challenges and hopes related to funding, and inspiring stories of people who show that you can live life to the fullest with haemophilia.

Podcast - Haemophilia Without Fear

A conversation about how haemophilia affects the daily lives of patients and their families. Experiences are shared by Katka Altmanová, chairwoman of Hemojunior, and Martin Bohůn, chairman of the Czech Haemophilia Society – both have lived with haemophilia in their families for generations. A friendly conversation full of hope, practical advice and personal stories awaits you.

Podcast - Haemophilia Takes, But Also Gives

In a new episode of the Na vlastní žíly podcast, host Michal Bereň talks with Michal Skořepa – a person with haemophilia who has dedicated decades to serving the community. They discuss childhood with the diagnosis, the transition to home treatment, sports and the importance of patient organisations. A friendly and inspiring conversation that will encourage everyone living with haemophilia.

Hemophiliacs Climbed Ještěd as One Big Family

Nearly 130 participants gathered on Saturday, April 12, for a group hike to Ještěd.

World Hemophilia Day Highlights Life with a Bleeding Disorder

Every year on April 17, we observe World Hemophilia Day, a rare genetic disorder that affects blood clotting.

Prof. Miroslav Penka - Annual Award Laureate 2024

The Czech Hemophilia Society Annual Award for 2024 was presented to Prof. MUDr. Miroslav Penka, CSc. The ceremonial announcement took place during the Gala Evening at the Marriott Hotel.