Czech Society of Hemophilia
Voluntary organization for people interested in Hemophilia and von Willebrand disease. Our mission is to inform members about everything that interests them and defend their needs.
Gene Therapy - A Practical Guide
Podcast - Life of a Haemophiliac in the Mirror of Modern Medicine
Identifikátory osob s poruchou krevního srážení
News
Intergenerational Meeting 2025
19/10/2025The Czech Haemophilia Society in cooperation with Hemojunior has prepared the 11th edition of our largest annual event, which brings...
Podcast - Life with Haemophilia Without Borders
15/09/2025In the second part of a special two-part episode of the Na vlastní žíly podcast, we meet with Kateřina Altmanová (Hemojunior) and Ma...
Podcast - Haemophilia Without Fear
15/07/2025A conversation about how haemophilia affects the daily lives of patients and their families. Experiences are shared by Katka Altmano...
Podcast - Haemophilia Takes, But Also Gives
15/05/2025In a new episode of the Na vlastní žíly podcast, host Michal Bereň talks with Michal Skořepa – a person with haemophilia who has ded...
Hemophiliacs Climbed Ještěd as One Big Family
16/04/2025Nearly 130 participants gathered on Saturday, April 12, for a group hike to Ještěd.
World Hemophilia Day Highlights Life with a Bleeding Disorder
14/04/2025Every year on April 17, we observe World Hemophilia Day, a rare genetic disorder that affects blood clotting.
What is Hemofilia and Von Willebrand disease?
Haemophilia is a rare genetic disease caused by a deficiency of factor VIII (haemophilia A) or factor IX (haemophilia B). The consequence is very low blood clotting.
HemophiliaVon Willebrand (vWch) disease is the most common congenital bleeding disorder caused by a qualitative or quantitative defect in von Willebrand factor (vWF). The incidence is more frequent than in the case of haemophilia.
Von Willebrand disease