News: fotogalerie

Seventh CSH and Hemojunior Gala Evening at Hotel Juliš

On Saturday 14 February, the seventh annual gala evening of the Czech Haemophilia Society and Hemojunior took place, this time at Hotel Juliš on Wenceslas Square in Prague. Approximately 80 guests attended the event.

Hemophiliacs Climbed Ještěd as One Big Family

Nearly 130 participants gathered on Saturday, April 12, for a group hike to Ještěd.

In Sofia, Discussions Focused on Family Support and Other Rare Bleeding Disorders

This year's European Haemophilia Consortium conference, held in Sofia, focused on rare blood clotting disorders, including platelet function disorders such as Glanzmann thrombasthenia.

What Was the 2024 Intergenerational Meeting Like

From Friday 11 October to Sunday 13 October 2024, the tenth edition of our largest annual event took place in Jihlava — the popular Intergenerational Meeting, organised by the Czech Hemophilia Society together with Hemojunior.

With haemophilia, even to the summit of Mont Blanc?

Why not? This unique opportunity is available to nine selected individuals with bleeding disorders from across Europe.

Seaside 2023

More than a week ago, we returned from the long-planned international trip for people with hemophilia, their families, and friends, jointly organised by the Czech Hemophilia Society and Hemojunior.

ERIN for the First Time, Definitely Not the Last

After two years, a meeting of people with hemophilia and inhibitors took place in Barretstown, Ireland (European Rare and Inhibitor Network Summit).

Rhodes 2021

Shortly after publishing the article about the trip to Greece, we received two more contributions from participants. It is not often that an event generates so many written responses, and since we value each one, we are presenting them in a new article. Adding them to the original one could risk them being overlooked. So this is not information about another trip, as a different article title might suggest.

Greece 2020

The title of this article is not entirely wrong. The original plan was to organise the trip last year. However, just like the Olympians, we had to wait, and with a touch of nervousness about what might still happen during the stay, we set off on 8 July to the Greek island of Rhodes. We spent a wonderful week there, which I do not need to describe at length, as the contributions from participants that follow this introduction speak for themselves about the great time we had.

Red Once Again Illuminated April 17

On behalf of the Czech Hemophilia Society and Hemojunior and all people living with haemophilia or von Willebrand disease, we thank our partners and institutions who showed their support by lighting red lights on April 17, World Haemophilia Day. We appreciate your support! Photographer: Ondrej Hajek

Autumn Rehabilitation Retreat for Adults Took Place in the Třeboň Region

Due to spring government restrictions, we were forced to postpone the rehabilitation retreat for adult hemophilia patients to the turn of summer and autumn. Just before departure, we were once again worried whether everything would take place and under what conditions. In the end, however, almost everything worked out. The change of date and health complications of some registrants meant we did not fill the facility's capacity and did not beat last year's record in the number of participants. Even so, 40 people is a very respectable number. Nearly half were hemophilia or Von Willebrand patients. And if we include carriers in the count of hemophilia patients, we exceeded the halfway mark.

We Enjoyed Another Gala Evening at the Alcron

The event called the Gala Evening of the Czech Hemophilia Society and Hemojunior celebrated a lovely half-round anniversary. Perhaps even Katka Altmanova, who is the central figure behind the organisation of this event, did not believe it would see its fifth birthday. And given how well all the previous editions turned out, one can only wish her to reach the round anniversary. As the opening lines suggest, it was once again a very successful evening. There were more guests than originally anticipated, and the space where everything took place had to be reorganised. Those who were particularly looking forward to the delicacies of head chef Roman Paulus were greatly surprised to find no tables for the traditional buffets in the hall. They no longer fitted, and additional tables had to be added. But we did not miss out on the anticipated treats, as they were newly set up in the anteroom.

Jihlava Intergenerational Meeting — Not Just About News in Hemophilia Treatment

In November, the seventh meeting of the Czech Hemophilia Society and Hemojunior took place at the EA Business Hotel in Jihlava. The pleasant premises provided a suitable venue for gaining new enriching knowledge and social gatherings for exchanging experiences. The professional programme met our expectations as always — both the Friday lecture on lower limb axis correction by orthopaedist Petr Teyssler, accompanied by numerous photographs, and the personal experiences of young hemophilia patient Lovre Šuta with the myPKFIT mobile application received positive feedback. The varied programme continued with Saturday's thought-provoking lecture by psychologist Petra Bučková and physiotherapist Marie Katzerová on pain in coagulation disorders, the witty and encouraging talk by another psychologist David Bystrický, and last but not least, new information on hemophilia treatment options from haematologist Jan Blatný.

Adult Rehabilitation Retreat in Rokytnice, Orlické Hory

During the week from 18 to 25 May, another rehabilitation retreat for adult haemophilia patients took place. At this new venue too, we ran into capacity limitations and registration for the retreat had to be closed as early as February. For those who attended, however, Penzion Rokytenka offered a pleasant setting and a beautiful environment not only within the property grounds but also in the surrounding area. At this point, we are deciding whether to return here next year or take advantage of another option with a higher capacity. And how did we spend our week in Rokytnice? The contribution from Radim, who participated in the retreat for the first time, says it all. We thank him for his lines below and look forward to further gatherings together. On behalf of the organisers, Michal Skořepa.

Women and bleeding disorders

Women bleed too, and not just during menstruation. For women with a bleeding disorder, menstruation can turn into a nightmare, with heavy bleeding lasting more than seven days. And since their mothers, grandmothers, and sisters may have similar problems, they consider it "normal". Menstruation lasting longer than 7 days, or requiring sanitary products to be changed every two hours, may be a symptom of a bleeding disorder. In such a case, the woman should be examined at one of the haemophilia treatment centres. The historically first meeting of women with blood clotting disorders in Europe took place in recent days in Frankfurt am Main. The conference was organised by the European Haemophilia Consortium (EHC), and the Czech Hemophilia Society was represented by our long-standing active member Tereza Říhová.

Once Up, Once Down (Below)

On the last Saturday of April, it was time to descend into the depths of the Anselm mine at Landek Park in Ostrava-Petřkovice. Landek is a hill in Ostrava, and not just any hill. It is a world-renowned locality in terms of geology, archaeology, history, natural science, and mining. From early morning it was clear that something was being prepared in the local compressor hall. From almost every corner of the country, participants dressed in red gradually began to arrive to share a day full of discovery and fun. All of this in connection with World Haemophilia Day, which we commemorate every year on 17 April. The majority were naturally local members of the Czech Hemophilia Society and Hemojunior — those from Ostrava, including the physician and nurse from the Ostrava haemophilia centre.

Vráž Spa through the photographic lens of people with haemophilia

In recent days, almost twenty people with haemophilia, this time not only those with inhibitors, headed to the Vráž spa facility near Písek. It has become a tradition for people with haemophilia to meet in Vráž twice a year -- in spring and autumn. The week-long intensive rehabilitation programme includes group and individual exercises, hydrotherapy, and educational lectures by leading experts. This time was no different.

Another Gala Evening Is Behind Us

The gala evening of the Czech Hemophilia Society and Hemojunior, held on Saturday 12 January 2019 at the Alcron Hotel Prague, has become a wonderful tradition. The event was above all an opportunity for all of us to meet again and enjoy ourselves in pleasant surroundings and festive attire. Moreover, 2019 is a special year for Hemojunior. Michael Beren recalled its eighteen years of service for children with hemophilia. He also took on the role of master of ceremonies and guided us through the entire evening. At the opening, he welcomed the attendees and thanked the sponsors, without whom our organizations could not provide most activities for their members, and greeted their representatives. Thanks were also extended to the physicians and, last but not least, to the management and staff of the Alcron Hotel.

Adult Rehabilitation Retreat 2019 in a New Setting

After three years at Penzion Ohrada, we have decided on a change. This time we will head to the Orlické Hory mountains, specifically to Hotel Rokytenka in Rokytnice v Orlických Horách. Once again, it is a property in a beautiful setting that will be reserved exclusively for us. A swimming pool, whirlpool, sauna, games room, common room, restaurant lounge, outdoor area including seating and a children's playground will all be available. More information about the property can be found at www.rokytenka.cz. The hotel is just a short walk to the town square of this small town of two thousand inhabitants. There are many interesting places nearby for excursions.

All Generations of Haemophilia Patients Gathered in Jihlava

The intergenerational meeting of haemophilia patients and their closest ones holds a special place in our calendar. Nobody doubted that interest would be great again this year. The topics clearly invited it. Nearly one hundred and fifty participants filled the pleasant premises of the EA Business Hotel in Jihlava to learn about the latest developments in not only the haemophilia world. This time, the Society also made room for people with von Willebrand disease. Unfortunately, interest from members with this condition was almost nil. And so the entire programme focused on haemophilia-related topics.

Zubří in ancient Greek garb

On the last June evening of 2018, a total of 34 Greek citizens were invited to a great feast in Kalipolis, held in the presence of the ancient Olympic gods, and which marked the beginning of a two-week contest for the favour of Zeus, Hades, Poseidon, and the other Olympian gods. Yes, we are of course talking about the annual summer haemophilia camp, once again held in Zubří in the Vysočina region, which this year was thematically set in the spirit of ancient Greece.

A congress connecting science, medicine and a strong community of people with inherited bleeding disorders

New possibilities in haemophilia treatment offer hope for the future. Whether it is extended half-life products, non-factor replacement therapies, or gene therapy. These and many other topics were intensively discussed by the plenary of the World Federation of Hemophilia (WFH) at its traditional world congress, held at the end of May in Glasgow, Scotland. The five-day congress offered more than 5,000 participants a wide range of events, including several scientific sessions addressing topics that are currently shaping the "haemophilia" world.

The Last Time in Vísky?

During the week of 11–19 May, another edition of the rehabilitation retreat for adult hemophilia patients took place. Most likely for the last time in a while at the Ohrada guesthouse in Vísky near Letovice. While the guesthouse meets practically all our requirements for holding this retreat, the general consensus is that it is time for a change. We are currently searching intensively for a suitable location and for now it looks like next year we will head to the Orlické hory mountains. Jarek Trefil shared his impressions from the retreat. We thank Jarek and look forward to further gatherings with everyone. On behalf of the organisers, Michal Skořepa.

We Love Science

Saturday 14 April was a much-anticipated day for members of the Society and Hemojunior. Even though the beautiful spring weather encouraged outdoor activities, the attractions of Techmania in Plzen proved irresistible for about 150 of our members. They once again came to celebrate the day that belongs to haemophilia patients worldwide -- 17 April. All this was traditionally made possible with the very generous support and cooperation of Novo Nordisk. Truly extraordinary experiences awaited at Techmania itself.

A Promising Trail in Zubří

One of the important roles of the Czech Hemophilia Society is undoubtedly the active involvement of young people with hemophilia in its activities. Children have their camps, adults have rehabilitation retreats. But what about those in between? As some children approach adulthood, camps become uninteresting to them — they have different priorities. And hoping that we will meet them again in a few years at the adult retreat? A naive idea. There is therefore a gap that we want to bridge together and give an opportunity to individuals who may be our hope for the future. Not only in organising retreats, but perhaps also in leading the society, which is an indispensable part of our hemophilia community.

The Dance Floor Comes Alive at the Alcron

A unique setting, great company, and a packed dance floor. That is how one could describe the last Saturday of January, which was graced by a gathering of members and supporters of both organisations, the Czech Hemophilia Society and Hemojunior. Since most of the Society's board members were travelling to the capital anyway, we decided to combine the pleasant with the useful. Before the evening festivities, the CSH Board convened for a joint session to discuss further matters and steps in its work, and immediately after the meeting adjourned, moved to the nearby Hotel Alcron.

Haemophilia Was the Topic in Hradec

'Hello, I am a carrier and my brother Lukas has haemophilia...' That is roughly how the event began on Saturday 2 December at the NaPLAVKA cafe & music bar in Hradec Kralove. It was not a meeting of an anonymous alcoholics' club, but a gathering on the topic of haemophilia. Since this rare disease causes bewilderment in our parts, we wanted to dispel certain misconceptions -- for example, what kind of pressure is placed on carriers when they decide to start a family, what it is like to give birth to a child with haemophilia, what it is like for children with haemophilia to grow up, and how the choice of education, hobbies, career, and partners is affected.

You Can Never Have Enough Information

Over the past five years, autumn has become a time when hemophilia patients of all age groups share moments together at the traditional intergenerational meeting. This year was no exception. The second October weekend brought all participants together in the largest conference space at the Top Hotel in Prague. For young and old alike, it was an adventure navigating the local labyrinth of corridors. No one got lost, however, and nearly one hundred and fifty participants could enjoy shared moments with friends and renowned experts.

Adult Rehabilitation Retreat in Vísky

This year's edition was marked by newcomers. There were eight of them, and another three participants returned to the retreat after many years. The retreat was record-breaking not only in this regard, but also in terms of the total number of participants. After a year, we once again gathered at Penzion Ohrada in Vísky near Letovice, where we had full facilities at our disposal. Accommodation with meals, a common room, rehabilitation rooms, a whirlpool, a swimming pool, and last but not least a conference hall with projection where we watched the Ice Hockey World Championship. The result of our hockey players was perhaps the only negative of the entire retreat. Its programme hardly needs a lengthy description any more. Rehabilitation and hydrotherapy were complemented by horse riding, excursions, a table tennis tournament, barbecues, and campfire cooking. More in the photo documentation.

Following the Tracks of the Oslavany Permons...

Just a few kilometres southwest of Brno lies an area that this year became a refuge for all those who decided to come and celebrate World Hemophilia Day. A day full of relaxation, discovery, fun, victories, and adventure awaited them. We're talking about the Permonium amusement park. It was created based on Oslavany legends on the grounds of the former Kukla coal mine, where six mysterious permons (mine spirits) have lived since ancient times - Starohorský, Bouchal, Zaklášterský, Vinohradský, Kovářova kopce, and Kopce Koblihu. The park is suitable not only for families with children, but visitors of all ages can find something enjoyable here. And so, once again after a year, traditionally thanks to Novo Nordisk, we had the opportunity to meet "our own" and experience an extraordinary day full of adventures and new discoveries.

An Evening Full of Great Entertainment

The beautiful setting of the Prague Alcron Radisson Blu hotel last Saturday (11 February 2017) was the venue for the 2nd gala evening of the Czech Hemophilia Society and Hemojunior. Sincere thanks for their willingness and generosity go to the hotel management for once again allowing us to hold a joint evening in these extraordinary premises. The renowned Alcron restaurant is one of three restaurants in Prague to have received Michelin stars. Guests were therefore able to enjoy an exceptional gastronomic experience, pleasant dancing, win valuable prizes in a raffle, and simply meet again after some time and spend a pleasant evening together.

Irish Barretstown Hosted Inhibitor Patients Meeting

On 1-4 December 2016, the first inhibitor patients conference under the auspices of the EHC (European Haemophilia Consortium) took place in Ireland. The venue was the Barretstown children's camp complex (County Kildare), founded by American actor Paul Newman in 1994 https://www.barretstown.org/. A total of 125 adults and children from 28 countries participated in the conference. In addition to hemophilia patients and their companions, EHC organizers, speakers, volunteers, and sponsor representatives were present.

Together again, albeit elsewhere

Many members and supporters of the association have grown accustomed to meeting each autumn at the "Together about Haemophilia" event. In recent years, everything took place at the Jezerka Hotel in Eastern Bohemia, but variety is the spice of life. In cooperation with long-standing partner Shire (formerly Baxalta, before that Baxter), CSH prepared a programme at a hotel by the Aquacentre in Čestlice – just outside Prague, right by the D1 motorway. The programme itself can hardly be reinvented; it is more about what fills the familiar framework. There is always an effort at renewal, but the foundation remains – delivering the latest information needed by everyone, keeping them up to date with developments and the outlook for care, and last but not least, answering as many questions as possible from participants.

This year's summer camp is behind us

The beginning of this year's summer holidays in haemophilia circles belonged to a truly traditional event -- the Summer Haemophilia Camp. For the third time, we visited the beautiful setting of the Zubří Recreation Centre near Nové Město na Moravě. This year saw many new faces among the camp participants, but the team of counsellors was also partially refreshed compared to previous years. However, all newcomers handled their roles excellently, and the camp proceeded in a relaxed atmosphere.

A Successful Change

The regular May rehabilitation retreat is already behind us for this year. As we announced in advance, this time it was in a different setting than in previous years. Not only did we move from Lednice after five years, but for the first time in the history of these stays we also moved away from a spa town. The Ohrada guesthouse in Vísky u Letovic was to replace it. It offers everything we need for our purposes, including meeting rooms, rehabilitation facilities, a swimming pool, and whirlpools. Including accommodation all under one roof. Comfort thus increased not only for the organizers, who did not have to prepare breakfast every morning, but also for participants, as they no longer had to walk anywhere. We especially appreciated this on days when the weather was not on our side.

Nobody Got Lost. Hopefully.

Loučeň Chateau near Nymburk was truly buzzing on Saturday. Nearly 160 participants came to enjoy not only the atmosphere of the chateau grounds, knights' tales, the Kašpárek and witch puppet show, or broomstick flying lessons performed by witches Gertrůda and Ethel, but mainly to meet friends once again after a year and commemorate World Hemophilia Day. Thank goodness the meteorologists were wrong this time — despite a slight cooling, we spent most of the day in the adjacent chateau park.

Those Who Didn't Show Up May Regret It

We are talking about the Friday social evening of the Czech Hemophilia Society and Hemojunior at the Alcron Hotel in Prague. A few dozen participants enjoyed music, good food and drink, pleasant company, and the surprise of a raffle. The Alcron Hotel provided its premises free of charge; it was just a pity that everything had to end by half past eleven, after which peace and quiet was required for the hotel guests. The advance notice mentioned a band led by society member Honza Roušar, and indeed they played, performing a range of genres. Truly for both dancing and listening.

Meeting of Generations for the Third Time

The autumn-coloured surroundings of Hotel Jezerka welcomed participants to another intergenerational meeting entitled "We Are Here for You." Once again, we were met with a warm reception and top-level services. The dry summer caused the water level of the Seč Reservoir to drop dramatically, but the same cannot be said about the number of participants. Although the attendance did not exceed last year's record, interest was again strong. Around eighty participants of all age groups could look forward to a range of new information from experts in several specialisations, practical demonstrations and exercises related to the previous lectures, wellness, and above all, different generations of those who share something in common with haemophilia met here.

Journey with the Little Prince

Almost everyone knows the book The Little Prince by Antoine de Saint-Exupery, whether child or adult. The book is full of beautiful quotes about life, love, and friendship, and many of us know some of the sayings by heart. In recent days, the 2015 haemophilia camp ended and with it our shared journey with the Little Prince. This year's camp-wide game was inspired by Exupery's most famous literary character and the adventures he experienced.

Renewed Interest

After a period of decline, a turnaround has come -- interest in the adult rehabilitation retreat has grown. Sixteen people interested in rehabilitation gathered in Lednice in mid-May, filling the guesthouse to full capacity. The programme remained the same as in previous years, but it did bring certain innovations. Particularly in the quantity and the associated quality of the rehabilitation itself. There is a difference whether two or four physiotherapists attend to the participants. That is exactly what happened, as two additional therapists joined the two traditional rehabilitation specialists. They normally work at the Vráž spa, which has maintained close contact with the organisation for several years now, so we consider them highly qualified experts.

Through Paradise, Preferably Barefoot

The highlight of the World Hemophilia Day celebrations was undoubtedly the gathering of Czech Hemophilia Society and Hemojunior members at the Zeměráj adventure park. The medieval village near the Orlice Dam came alive on the last Saturday of April with more than one hundred and fifty participants, who enjoyed a number of extraordinary experiences across the nine-hectare grounds. Not only children could try making fabric from wool and linen, spin a potter's wheel, or learn how people slept in 12th-century huts. At the archaeological site, we sifted through sand to find pottery shards, bones, coins, jewellery, and necklace beads, and could keep some as souvenirs.

April Belongs to People with Hemophilia

As has become a good tradition, people around the world who wish to commemorate World Hemophilia Day gather in April. It falls on the seventeenth day of the month and provides an opportunity for many interesting events -- some landmarks in world capitals even light up in red. It is no different here. In recent days, hemophilia has been the main topic of several social and sporting events.

How We Met in Ostrava

The last major gathering of this year took place in northern Moravia, and the regional workshop attracted a truly large number of participants. Among them were two young members of the association who described everything they witnessed as follows. The original plan to use the facilities and services of the Klimkovice spa fell through, so we headed to the pleasant setting of the Imperial Hotel. Everything was organized in cooperation with the Hematology Department of Ostrava University Hospital and Baxter. Despite initial concerns about low registration numbers, what was probably the highest number of participants in the entire history of workshops attended.

We Were Cheerful and Serious...

...but above all, for you. That was the name of the second edition of the gathering for all interested parties at the very nice Hotel Jezerka near Sec in eastern Bohemia. Last year the bar was set quite high, and this year — according to participant feedback — it was maintained. Defending is always far more difficult than starting. Once again, we can call the event a "meeting of generations." The age range covered virtually all categories and brought something for everyone. Again with an emphasis on the usefulness of the information provided, complemented by pleasant surroundings, an inviting wellness area, and hospitable treatment.

Zubří full of pirates and sailors

After years spent in the Beskydy Mountains, our camp moved a few kilometres further, to the Zubří recreational complex near Nové Město na Moravě. Here we spent just one week to try out the new environment and test our capabilities. The rich programme began on Saturday, 16 August, with an all-camp game launched by dividing the children and leaders into teams under the command of Baron Butterbrot Von Marmelade. In a themed setting, the Baron described his lifelong battle with the pirate Wilkinson and urged everyone present to help him find the way to the treasure, along with the promise of adventure on the shared journey.

Another Lednice Retreat Behind Us

Another traditional rehabilitation retreat for adults with physiotherapy, procedures, group discussions and evenings, barbecues — simply the right kind of relaxation that brings us together. Being in the Lednice-Valtice area, we also visited a wine cellar. With some sadness, we must note the repeated decline in the number of participants and the lack of interest from physiotherapists. We had been flagging the need for cooperation with new physiotherapists for a long time, but we were unable to attract anyone new. All the more thanks go to Alena and Naďa for joining us once again.

A Train Robbery with a Happy Ending

The end of April has traditionally been dedicated to World Hemophilia Day celebrations. This year, the celebrations took place on a larger scale than usual, as they were launched with a charity event in Prague held on 17 April itself. We have already reported on how it went, and you can recall it here. The second part of the celebrations then took place on Saturday 26 April, naturally with members of both the Czech Hemophilia Society and Hemojunior in attendance. Since some members of one or the other organization were apparently prevented from attending due to serious reasons (how else to explain someone voluntarily missing out on this exceptionally successful celebration), we bring you a brief report on how it went.

An Angelic Happening

The word "happening" has many equivalents. Yesterday's event in Prague on the occasion of World Haemophilia Day was neither shocking nor unconventionally artistic, but it became a very pleasant gathering and celebration of an important day. It was the culmination of an ongoing campaign called "I Support Haemophilia Treatment," sponsored by the pharmaceutical company Baxter. A website with the same name was created where people could support the efforts of the Czech Hemophilia Society and Hemojunior by purchasing special items prepared for this purpose.

April Full of Celebrations

World Hemophilia Day celebrations are approaching -- here is more detailed information. On the actual day, Thursday 17 April, a procession raising awareness about hemophilia will pass through part of Prague. It will start from Palackeho namesti at 4:00 PM, where you will find a clearly red and highly visible stand. The procession, led by ambassador Jana Dolezelova, should last approximately 50 minutes, culminating at the fountain on Namesti Kinskych in Smichov.

The "I Support Haemophilia Treatment" Campaign Has Launched.

At the end of January, a press conference was held on Střelecký ostrov in Prague with extensive media attendance, which kicked off the entire campaign. Baxter became the partner of the event, and the project ambassador — pharmacist and Miss Czech Republic 2004, PharmDr. Jana Doleželová — was also present.

A Sunny Haemophilia Weekend

The second November weekend belonged to everyone who wanted to learn about new developments in haemophilia treatment -- above all, to obtain information about current changes in social affairs, to discover the importance of psychological counselling in managing this disease, or to meet friends and exchange experiences with each other.

Those Who Didn't Come May Regret It

We are talking about the annual Conference of the society, which took place on Saturday and Sunday, 14 and 15 September, in Vráž near Písek. It was preceded by a massive information campaign through personal letters, on the pages of the Newsletter, and on the website. Nevertheless, not as many people came as expected. Despite zero costs, only a small portion of members were enticed.

Indian Summer at Ondrasov Dvur

For the ninth time, and most likely the last, our camp visited the Beskid mountain recreation center Ondrasov Dvur. Nearly 60 members of the Gothaj Indian tribe gathered here to unite in a common fight against the palefaces. We divided into four groups - Children of the Sun, Coyotes, Wakpa, and Peta Oyate - between which rivalry reigned during the stage games, but the everyday camp routine was the same for everyone.

Memories of Lednice

With some delay, for which we apologise, we bring information about this year's rehabilitation stay for adult haemophilia patients. The stay took place from 17 to 25 May with 19 participants. Compared to previous years, this represented a significant decrease in the number of attendees. Health and personal issues unfortunately prevented several regulars from attending. However, new faces appeared again and blended very well into the established group.

The Society Safely Back in Harbour

It navigated the challenges of the Bata Canal connected to the Morava River and, after several kilometres, returned to the harbour in Veseli nad Moravou. Not the entire Society, but those members and guests who came to celebrate this year's World Hemophilia Day. The actual date is in April, but since it can be windy on the water, the Society Council decided to postpone D-Day to May. It paid off -- the weather was very generous and after a long, persistent winter, it showed a friendly face to both sailors and passengers.

Hemophilia Ball in Slovakia

This year marks the thirteenth time that the "Slovak Hemophilia Association" (Slovenské hemofilické združenie) organised a formal hemophilia ball. This event, with a tradition spanning over a decade, aims primarily to bring members together in a relaxed, non-work atmosphere and foster friendly meetings among all supporters of Slovak hemophilia patients. Despite the unfavourable flu season, over 60 attendees participated in the ball, including hemophilia patients themselves, parents, friends of hemophilia patients, and those who simply enjoy the atmosphere and organisation of this event.

A Success? It Seems So

The long-prepared annual conference of the European Haemophilia Consortium in Prague is behind us. On Friday, Saturday, and Sunday, our capital became the capital of haemophilia Europe as well.

Choosing the Most Beautiful Picture

Pictures by children from the summer haemophilia camps. Vote for the best ones for the 2013 calendar! We would like to invite you to participate in voting for the most beautiful pictures by our children. The artworks were created at summer camps at Ondrasuv dvur and Belec. The twelve pictures that receive the most votes from you will be used to prepare the 2013 calendar. All the pictures are beautiful, so help us with your vote to select the top twelve!

Ondrášův Dvůr Lived the Olympics

On a weekend in mid-July, counsellors, doctors, a nurse, physiotherapists, and most importantly 42 children gathered for the eighth time at the Beskid Mountains facility Ondrášův Dvůr to spend the traditional two weeks together at the summer hemophilia camp. This year's Olympic Games in London were a major event, and so our camp-wide game also had an Olympic theme. This was reflected in nearly every activity at the camp -- the counsellors represented the Olympic Committee, the children went to train at the training centre, health issues were handled by the sports physician, and carbohydrates, fats, and proteins were replenished by the athletes at the nutrition centre.

Week-Long Reconditioning Stay in Lednice

Last week saw another edition of the reconditioning stay for adults. You can learn more about it from the contribution below. The organisers can confirm that the event was once again a success, and we thank the participants and especially the physiotherapists who took care of them. We have already reserved a date for 2013 -- 17 to 25 May. Those interested can therefore plan their holiday well in advance. On behalf of the organisers, Michal Skorepa looks forward to the next edition.

Photo Gallery: Parents of Young Hemophilia Patients Meet in Brno

Photo gallery from the meeting of parents of young hemophilia patients with medical staff, held on 21 April 2012 at Hotel Kozi horka in Brno. Parents met with physicians from the Paediatric Haematology Department of Brno University Hospital.

World Hemophilia Day Celebrations With Extraordinary Success

The fact that people with hemophilia gather around the world every year around 17 April is a long-standing tradition. However, the Czech Hemophilia Society, its sister organisation Hemojunior, with the support of pharmaceutical company Novo Nordisk, really hit the mark this time. A gathering was prepared for members and supporters on Saturday, 14 April, at the medieval Fortress Hummer near Prague.

Travelling Exhibition Hits the Road

The panels with photographs of members of the society and Hemojunior, titled "Every Face Has Its Story," have found their first home this year. The large-format portrait photographs by Vladimír Hurt have been on display in Hradec Králové since yesterday. The images were taken last year and have already been exhibited, for example, at the Kotva department store in Prague and on several other occasions. The creation and installation of the exhibition is managed by the company Bayer, from whom the idea originated.

Second Regional Workshop at Kundratice Spa

A Saturday full of information and good spirits - that was the second regional workshop. Sunny 24 September was marked by another round of regional workshops called "Together About Haemophilia", organised for its members by the association with the financial support of Bayer. This time in the picturesque Kundratice Spa in the Liberec Region.

The First Swallow Flew from Brno

The new programme of regional workshops for adults began yesterday. In Brno, a dozen South Moravian association members gathered at the Avanti Hotel to take advantage of the new opportunities. Everything was made possible thanks to Bayer, which covers all costs of the regional workshops. The four-star hotel in almost the very centre of Brno was the right choice. Participants had two large salons at their disposal - one for lectures and discussion, the other for rehabilitation. In addition, there was a sauna and whirlpool in the relaxation centre.

Photo Gallery: Summer Camp 2011 – A Year in the Country

Photo gallery from the 2011 summer hemophilia camp "A Year in the Country" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation -- Lednice 2011

Photo gallery from the very first adult rehabilitation stay for hemophilia patients in Lednice, 2011. A historic milestone organized by the Czech Hemophilia Society.

Photo Gallery: Hemophilia Day – Western Town Boskovice

Photo gallery from the World Hemophilia Day 2011 celebrations at the Western Town in Boskovice.

Photo Gallery: Summer Camp 2010 – The Hobbit, Battle of Arcikam

Photo gallery from the 2010 summer hemophilia camp "The Hobbit, Battle of Arcikam" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation – Velke Losiny 2010

Photo gallery from the adult rehabilitation stay for hemophilia patients in Velke Losiny, 2010. Rehabilitation, hydrotherapy, and a rich social programme in this spa town beneath the Jeseniky Mountains.

Photo Gallery: Hemophilia Day – A Day at Prague Zoo

Photo gallery from the World Hemophilia Day 2010 celebrations – a day at Prague Zoo, where Novo Nordisk invited members of the Czech Hemophilia Society and Hemojunior.

Photo Gallery: Summer Camp 2009 – Dr. Vapna Sanatorium

Photo gallery from the 2009 summer hemophilia camp "Dr. Vapna Sanatorium" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation – Velke Losiny 2009

Photo gallery from the adult rehabilitation stay for hemophilia patients in Velke Losiny, 2009. Rehabilitation, group excursions, and relaxation in the Jeseniky spa town.

Photo Gallery: Hemophilia Day – A Day with Go-Karts

Photo gallery from the World Hemophilia Day 2009 celebrations – an afternoon of go-karting organized in cooperation with the CSH Council and sponsored by Bayer-Schering.

Photo Gallery: Summer Camp 2008 – Quest for the Holy Grail

Photo gallery from the 2008 summer hemophilia camp "Quest for the Holy Grail" at Ondřášův dvůr.

Photo Gallery: Adult Rehabilitation – Velke Losiny 2008

Photo gallery from the adult rehabilitation stay for hemophilia patients in Velke Losiny, 2008. One of the earliest editions of the rehabilitation programme in this popular spa town.